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What It's Like To Be Married To The Chronically Ill - Chronically Whole

What It’s Like To Be Married To The Chronically Ill

February 8, 2016 | Posted in: Caregivers, Chronic illness and relationships, chronic illness; support, Love, Marriage, Relationships

Roses are red. Violets are blue. Sometimes I wonder how we get through.

Life, that is. How do we (my wife and I) get through a life that requires an all-star team, when half the team is on injured reserve? How do I—in my dual role as coach—also juggle team morale issues, logistical concerns and what to do about all those piles of dirty uniforms? Well, simply put, you lace ‘em up and run out on the field every day. You show up.


Now, it’s not that simple. It never is. You have to perform and to a high level on most days. Some days, the bar is set at survival (ok, many days). Other days, you can accomplish superhuman feats. But the reality is that the alternative to not showing up is to let the team down. And failure is not an option for this team because you love the team too much to see it fail.

In the first years of my wife’s illness, I subconsciously told myself that “normal life” was just a matter of time. The odds were incredibly stacked in our favor in that the medical community would figure this out and these obstacles would be but a memory in the past. That’s how things went for nearly every other person in their thirties that I knew. But when that did not occur and we seemed further from answers than ever before, I realized that focusing on the “why” and the “when” was incredibly short-sighted. Those were answers that I was not privy to, and may never be privy to. Instead, I realized that I was placed in the exact position that I had been called for—the one that my Creator had built me for in this time and this place. Who I was had been designed for my wife, our family, this life—today and every day thereafter.

Embracing this reality freed me to operate within my gifts with the confidence that there was nothing too large and impossible that would take me out of the game. And trust me, there were plenty of “impossibles” that came up, and still do. The point was I had to take my place where God had positioned me and be the conduit of caring He called me to be.

I distinctly remember times (not too long ago) when I would finish a week having worked 60+ hours, driven 12+ hours between work and chauffeuring kids, averaging four hours of sleep per night and feeding/picking up after a family of five. And I would marvel at how God had supplied just what I needed in order to meet what others needed. And in the end, everyone was cared for. I didn’t meet all their needs, but I did what I was called to do.

In fact, that’s what we’re all called to do. Because without the faithful care provided by so many other people outside of my family, we would still have come up short despite my provision of everything I had. That’s why my job and your job are no different when it comes to caring for our spouses. For every marriage, for every “for better” and “for worse,” we are called to care and love according to the measure that has been apportioned to us. And, by the way, that’s why chronically ill spouses never ever have to feel inferior on the marital love scale. Success is in the full delivery of each spouse’s whole-hearted contribution.

heart-700141_640As a wise blogger once remarked, “We don’t get to pick. We only get to equip.” Meaning, we may not be able to choose what happens along our journey but can choose to take our rightful place alongside those with whom we journey. That blogger just happens to me on my team. And for her:

Roses are red. Violets are blue. Life is hard, but I still choose you.

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  1. Andrea Stunz
    February 8, 2016

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    What an encouragement this will be to other spouses/significant others. Thank you for your willingness to share and for continuing to choose your wife.

  2. Robin Lee
    February 10, 2016

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    OK. I am dying of the preciousness of his words. He loves you so much. Congratulations. Well done.

  3. Barb Camp
    February 11, 2016

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    What a wonderful idea to have your hubby write what it’s like from the caregiver’s perspective and what an amazing job he did♡♡♡♡

  4. Stacey Philpot
    February 12, 2016

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    Thank you, Barb. It was vulnerable for both of us, but our hope is that it opened up discussion for other couples who find themselves in similar situations.

  5. Will
    February 25, 2016

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    Great job. Very well put.

  6. TERRY
    May 28, 2016

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    There is this nice whoosh of security that comes with getting engaged and married, when you’re suddenly like,

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