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Jun 15

June 15, 2017

3 Truths About Relationships in the Belly of the Cave

3 Truths About Relationships in the Belly of the Cave

If like me, you’ve known sickness of any kind, or even simply walked through a particularly difficult time in your life, you’ve most likely also experienced a myriad of responses from those close to you. Maybe the people you least anticipated being the heroes in your story showed up on the scene and continue to show time and time again. More... Read more

Posted in chronic illness; support | By

Feb 9

February 9, 2017

6 Tangible Ways to Support the Hurting in Your World

6 Tangible Ways to Support the Hurting in Your World

It’s commonplace to rally around joyous transitions, signing up to bring new parents a meal or two to sustain them during the first sleepless days of a newborn’s life, pitching in to help the neighbors throw a graduation party for their high school senior. It’s also commonplace to circle the wagons around those who have lost a loved one with... Read more

Posted in Cancer, Community, Relationships | By

Feb 6

February 6, 2017

10 Ways You Can Help Me on the Bad Days

10 Ways You Can Help Me on the Bad Days

Living with chronic illness is hard. There are days the pain, fatigue, and every-day-ness of it is too much to push through. A huge part of chronic illness, at least for me, is pushing through because giving up isn’t a choice, but there are some days when it’d be easier than others to throw in the towel. Your friends want to help.... Read more

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Feb 2

February 2, 2017

Learning to Live in Times of War and Famine of the Soul

Learning to Live in Times of War and Famine of the Soul

I sat before the doctor; equal parts wise and kind, spritely and gentle. He has one tuft of white hair that shoots straight up while the others have been tamed. Somehow this makes me love him all the more. His spectacles sit low on his nose as he studies my most recent labs. He is eager to get to work.... Read more

Posted in chronic illness; support, Coping | By

Oct 20

October 20, 2016

An Open Letter to the Chronically Ill

An Open Letter to the Chronically Ill

It is my honor to love and serve you. While it is true I don’t understand your medical condition; I can’t relate to physically not being able to get out of bed each day, and I don’t comprehend your insecurity of not being enough. I do want to tell you that you are valued. You are appreciated. You are enough.... Read more

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Aug 22

August 22, 2016

"I Have No One" Responding to the Cries of the Sick

“I Have No One” Responding to the Cries of the Sick

I sat with legs crisscrossed applesauce, eating a bowl of honeycombs with a shameful ferocity before preschool pick-up would end these heavenly moments of silence. Skimming the cable guide’s offerings, I settled on the noonday news. Instantly, an invisible hand was reaching from the television, thrusting open my chest and extracting my heart with skillful precision. Instead of a red... Read more

Posted in chronic illness; support, Isolation, Relationships | By

Jun 9

June 9, 2016

That Faithful Friend

Befriending those with rare and chronic illnesses is not for the faint of heart. Your job description—should you choose to accept it—will include: walking with us through the plentiful highs and lows, learning a new language (the language of our illness), grieving alongside us, possibly purchasing a medical dictionary, no longer pretending it’s all okay, and last (but not least)... Read more

Posted in Caregivers, Chronic illness and relationships, chronic illness; support, Physicians, Relationships | By

May 19

May 19, 2016

3 Tips For Surviving a Flare

3 Tips for Surviving a Flare

Flare-ups are a regular and unfortunate part of living with an autoimmune disease. They LOVE to come right when we are busiest, invading our days with pain and dizziness where there was no room for such miseries. I’m experiencing one currently, as often happens when I am due for my next chemotherapy infusion (Remicade every four weeks, totally worth it!).... Read more

Posted in Chronic illness and relationships, chronic illness; support, Chronic Life | By

Feb 8

February 8, 2016

What It’s Like To Be Married To The Chronically Ill

Roses are red. Violets are blue. Sometimes I wonder how we get through. Life, that is. How do we (my wife and I) get through a life that requires an all-star team, when half the team is on injured reserve? How do I—in my dual role as coach—also juggle team morale issues, logistical concerns and what to do about all... Read more

Posted in Caregivers, Chronic illness and relationships, chronic illness; support, Love, Marriage, Relationships | By

Jan 13

January 13, 2016

Fighting With the Chronically Ill

Anita I remember the first time I heard about chronic illness. Although I didn’t fully understand what chronic illness was or had never even heard the term, my first memory of it was called fibromyalgia and it sunk teeth deep into my mother in law’s body. She was very energetic. She was accustomed and happy to do everything in and... Read more

Posted in Caregivers, Chronic Illness and Diagnosis, Chronic Illness and Pain, Chronic illness and relationships, chronic illness; support | By