Viewing: Support

Aug 17

August 17, 2017

3 Things I Want You to Remember on Bad Days

3 Things I Want You to Remember on Bad Days

Just when we think we might be getting a handle on things, our latest diagnosis or setback, we find ourselves reeling. Be it a flare, a concerned call from the doctor, a flagged set of numbers in our weekly blood work, or a day when the pain is seemingly unbearable, it can be hard to remember things might ever be... Read more

Posted in Chronic Life | By

Aug 10

August 10, 2017

How to Find the Light When It All Goes Dark

How to Find the Light When It All Goes Dark

Today started out on an aggravating note. The repair guy at the house there to fix some damage from our lightning strike showed up late, causing me to run late for a meeting with an editor. My head has hurt for days, and it decided to pick today to amp up the pain to ten. There were some troubles with... Read more

Posted in Chronic illness and relationships, chronic illness; support, Chronic Life, Relationships | By

Aug 7

August 7, 2017

To the Ones Who Let Us Scream It Out When the Bottom Drops Out

To the Ones Who Let Us Scream It Out When the Bottom Drops Out

This week I stood on a wooden platform. Sweaty, eager, teenagers in cut off shorts holding souvenir cups surrounded me. The soundtrack, a cacophony of nervous chatter about what might happen should the coaster become stuck or spontaneously fall apart and the click-click-clack sound of the coaster slowly rising followed by the thrilled screams of riders. My stepdaughter and I... Read more

Posted in chronic illness; support | By

Jun 15

June 15, 2017

3 Truths About Relationships in the Belly of the Cave

3 Truths About Relationships in the Belly of the Cave

If like me, you’ve known sickness of any kind, or even simply walked through a particularly difficult time in your life, you’ve most likely also experienced a myriad of responses from those close to you. Maybe the people you least anticipated being the heroes in your story showed up on the scene and continue to show time and time again. More... Read more

Posted in chronic illness; support | By

Feb 9

February 9, 2017

6 Tangible Ways to Support the Hurting in Your World

6 Tangible Ways to Support the Hurting in Your World

It’s commonplace to rally around joyous transitions, signing up to bring new parents a meal or two to sustain them during the first sleepless days of a newborn’s life, pitching in to help the neighbors throw a graduation party for their high school senior. It’s also commonplace to circle the wagons around those who have lost a loved one with... Read more

Posted in Cancer, Community, Relationships | By

Feb 6

February 6, 2017

10 Ways You Can Help Me on the Bad Days

10 Ways You Can Help Me on the Bad Days

Living with chronic illness is hard. There are days the pain, fatigue, and every-day-ness of it is too much to push through. A huge part of chronic illness, at least for me, is pushing through because giving up isn’t a choice, but there are some days when it’d be easier than others to throw in the towel. Your friends want to help.... Read more

Posted in chronic illness; support | By

Feb 2

February 2, 2017

Learning to Live in Times of War and Famine of the Soul

Learning to Live in Times of War and Famine of the Soul

I sat before the doctor; equal parts wise and kind, spritely and gentle. He has one tuft of white hair that shoots straight up while the others have been tamed. Somehow this makes me love him all the more. His spectacles sit low on his nose as he studies my most recent labs. He is eager to get to work.... Read more

Posted in chronic illness; support, Coping | By

Oct 20

October 20, 2016

An Open Letter to the Chronically Ill

An Open Letter to the Chronically Ill

It is my honor to love and serve you. While it is true I don’t understand your medical condition; I can’t relate to physically not being able to get out of bed each day, and I don’t comprehend your insecurity of not being enough. I do want to tell you that you are valued. You are appreciated. You are enough.... Read more

Posted in chronic illness; support | By

Aug 22

August 22, 2016

"I Have No One" Responding to the Cries of the Sick

“I Have No One” Responding to the Cries of the Sick

I sat with legs crisscrossed applesauce, eating a bowl of honeycombs with a shameful ferocity before preschool pick-up would end these heavenly moments of silence. Skimming the cable guide’s offerings, I settled on the noonday news. Instantly, an invisible hand was reaching from the television, thrusting open my chest and extracting my heart with skillful precision. Instead of a red... Read more

Posted in chronic illness; support, Isolation, Relationships | By

Jun 9

June 9, 2016

That Faithful Friend

Befriending those with rare and chronic illnesses is not for the faint of heart. Your job description—should you choose to accept it—will include: walking with us through the plentiful highs and lows, learning a new language (the language of our illness), grieving alongside us, possibly purchasing a medical dictionary, no longer pretending it’s all okay, and last (but not least)... Read more

Posted in Caregivers, Chronic illness and relationships, chronic illness; support, Physicians, Relationships | By