Viewing: Pain

May 22

May 22, 2017

When the Greatest Challenge Is Believing for More

When the Greatest Challenge Is Believing for More

There’s a verse in scripture where a man cries out, “Lord I believe, help my unbelief!” This broken man is in tears as his soul cries out. Desperately, he wants to believe all things are possible. He wants to believe for more. He doesn’t want to be held captive by fear. Yet, his pain is so real. Perhaps, it’s more... Read more

Posted in Faith, Gratitude | By

Mar 20

March 20, 2017

The Powerful Connection between Pain and Hope

The Powerful Connection between Pain and Hope

As an Occupational Therapist, I deal with other people’s pain daily. As soon as the introductions are over, I ask about pain levels. “Do you hurt anywhere? On a scale of one-to-ten, how much pain are you in? Describe your pain.” Most people I encounter are in some kind of pain, so much so that I sometimes become numb to... Read more

Posted in Chronic Illness and Pain | By

Nov 3

November 3, 2016

How to Keep on Living When the Pain Doesn't End

How to Keep on Living When the Pain Doesn’t End

It has been four months since Grace came down with a virus that has turned into a nightmare of doctor appointments, tests, and non-answers, as she continues to battle pain and fatigue. Her head and stomach hurt constantly, she gets tired easily, school seems to exacerbate it all (though whether that is physical or emotional, I can’t quite work out),... Read more

Posted in chronic illness; support | By

Oct 3

October 3, 2016

Chronic Illness Made Me Do It

Chronic Illness Made Me Do It

The list of words I never wished to utter is surprisingly long.   “I can’t.”   “It hurts.”   “The pain is unbearable.”   “I would honestly rather die than live another day like this.”   “I don’t understand. What did I do wrong?”   “I need more from you.”   “I think I might be losing my mind.”  ... Read more

Posted in Chronic Life | By

Sep 22

September 22, 2016

The Answer to the Question, "How Are You?"

The Answer to the Question, “How Are You?”

How are you feeling? It’s got to be the most loaded question out there. As a chronic illness fighter/warrior/survivor I don’t really know how to answer that question. Heck, I don’t even really know what to call myself in terms of chronic illness. Probably not. Not many of the spoonies I know do. It’s too much to get started with... Read more

Posted in chronic illness; support, Chronic Life | By

Aug 11

August 11, 2016

Licking the (Yummy) Filling of an Oreo Sandwich Cookie

Licking the (Yummy) Filling of an Oreo Sandwich Cookie

Out of all that happened this past week, three things stand out: 1) I had to take my car into the repair shop for the nth time this month, due to the inadvisability of driving with the engine light on, 2) My husband and I watched a gorgeous sunset (from our kayaks) across a beautiful little private lake during our... Read more

Posted in Chronic Illness and Pain, chronic illness; support, Chronic Life, Faith, Rheumatoid Arthritis | By

Jul 28

July 28, 2016

To Melanie, from Your Future Chronic Illness

To Melanie, from Your Future Chronic Illness

You’re an adult now, newly 18. You’ll leave for college soon and it won’t be easy. The adjustment won’t be too bad, you’ll make a few friends and earn good grades. But as the year progresses, the real difficulty begins. When you can’t use the restroom without crying because of pain and your mom comes to pick you up to... Read more

Posted in Caregivers, Chronic Illness and anxiety, Chronic Illness and Diagnosis, Chronic Life | By

Jul 21

July 21, 2016

6 Chronic Illness Warriors I Admire

Dear Younger Me When I Was Healthy…

Dear Kelly, This is me, your future self. You are about to embark on a journey that you never planned and life is going to get very hard. I want you to stop focusing on yourself and living as the world tells you to live. I want you to make sure that you pray to G-d every day for everything because... Read more

Posted in Chronic Illness and body image, Chronic Illness and Diagnosis, chronic illness; support, Chronic Life, Faith | By

Apr 11

April 11, 2016

Meeting Others In Their Pain

Today, the five of us sat at the table, eating lunch and talking about death. Sometimes laughing and at other times in tenuous, heavy tones— we talked about what we’d want our funerals to look like and how we felt about the ones we’d been to. I’m not sure how the conversation led us to this place, but I’m also... Read more

Posted in Chronic illness and relationships, chronic illness; support, Grief, Parenting and Chronic Illness, Relationships | By