Viewing: Multiple Sclerosis

Jun 8

June 8, 2017

Is It Invisible Illness or Not Willing to Be Understood Illness?

Is It Invisible Illness or Not Willing to Be Understood Illness?

By now you’ve probably figured out I’m “sick.” I have issues with that statement for two major reasons. One, to me the word sick has always seemed so temporary. There needs to be a better, stronger word for what I am. But yes, I guess I am sick. I guess I know it. Grumble, grumble, grumble. Two, I don’t want... Read more

Posted in Chronic illness and relationships, chronic illness; support, Chronic Life | By

Mar 30

March 30, 2017

But I Want What You Have- the Compassion Quandary

But I Want What You Have- the Compassion Quandary

MS, TN & chronic migraines cause me a wide variety of symptoms. Like, I could be here all day listing them. Among my symptoms are: numbness, tingling, facial pain, muscle spasms, limb weakness, dizziness and fainting. This is every day. As in multiple parts of my body can have all kinds of chaos going on, all at once, even. Try... Read more

Posted in Anger, Chronic illness and relationships, Chronic Life | By

Feb 6

February 6, 2017

10 Ways You Can Help Me on the Bad Days

10 Ways You Can Help Me on the Bad Days

Living with chronic illness is hard. There are days the pain, fatigue, and every-day-ness of it is too much to push through. A huge part of chronic illness, at least for me, is pushing through because giving up isn’t a choice, but there are some days when it’d be easier than others to throw in the towel. Your friends want to help.... Read more

Posted in chronic illness; support | By

Oct 17

October 17, 2016

6 Chronic Illness Warriors I Admire

6 Chronic Illness Warriors I Admire

At the risk of sounding like a creeper: I love people. If Buddy the Elf loves smiling, smiling is his favorite, I love people. People are my favorite. I am intrinsically drawn to people. If you were to ask me what my favorite thing about any job or position I’ve ever held was my answer would be simple: the people.... Read more

Posted in Chronic Life | By

Sep 22

September 22, 2016

The Answer to the Question, "How Are You?"

The Answer to the Question, “How Are You?”

How are you feeling? It’s got to be the most loaded question out there. As a chronic illness fighter/warrior/survivor I don’t really know how to answer that question. Heck, I don’t even really know what to call myself in terms of chronic illness. Probably not. Not many of the spoonies I know do. It’s too much to get started with... Read more

Posted in chronic illness; support, Chronic Life | By

Jul 14

July 14, 2016

Dear Husband, I wish you knew how strong you are.

Dear Husband, I wish you knew how strong you are

Dear Husband, I wish you knew how strong you are. I wish you could see yourself through my eyes. Every day I wake up and watch you defy odds. The way you live your life is so much more than popping a pill or taking a shot. I don’t know any other 10-year-old boy who has announced to his mother... Read more

Posted in Caregivers, chronic illness; support, Love, Marriage, Physicians, Relationships | By