Viewing: Lyme Disease

Jan 30

January 30, 2017

The Dangers of Love on the Wildwood Exit

The Dangers of Love on the Wildwood Exit

You hear a lot about happiness on your wedding day.   He just seems to make her so happy.   The bride was beaming with happiness.   I hope you two live happily ever after.   And whether she realizes it or not, every blushing bride prances down the aisle with her own vision of what her happily ever after... Read more

Posted in Autism, Chronic Illness and Diagnosis, Chronic Life, CVID, Lyme Disease, Marriage | By

Dec 1

December 1, 2016

When the Other Shoe Drops

When the Other Shoe Drops

Not long ago, I sat with my daughter on my lap, holding her arms down while she screamed. The first attempt at a blood draw had failed and we were moving on to the second arm. She’ll be five next month. She usually does quite well with these things. She hops up into the chair, thrusts her arm upon the... Read more

Posted in Caregivers, Chronic Illness and Diagnosis | By

Sep 19

September 19, 2016

How to Deal When Your Child Prays for a Normal Parent

How to Deal When Your Child Prays for a Normal Parent

It’s been a hard week, and yet, it’s only half way through. You know those kinds of weeks, right? Where each morning you wake up and think, “Today, has to be Friday, right?” But somewhere someone is replaying the same dreadful Tuesday over and over again like a modern-day groundhog’s day. For me, a major culprit has been a particularly... Read more

Posted in Parenting and Chronic Illness | By

Sep 8

September 8, 2016

How to Maintain Deep Friendships in the Midst of Chronic Illness

How to Maintain Deep Friendships in the Midst of Chronic Illness

We’ve all seen and/or experienced it. Chronic illness seems to rob us of some of our most treasured friendships. Maybe we simply lack the time to nurture those relationships or that particular friend loses interest in what’s quickly become a complicated and taxing relationship. How do we maintain lasting, meaningful friendships in the midst of chronic illness? Today, my dear... Read more

Posted in Chronic illness and relationships, chronic illness; support | By

Sep 1

September 1, 2016

The Roller Coaster of Life with a Chronically Ill Parent

The Roller Coaster of Life with a Chronically Ill Parent

Growing up is a roller coaster, and living with a parent with a chronic illness is another loop and turn to add to that roller coaster. My stepmom has an illness that is a major disadvantage to her way of living. Having this illness creates bumps in the road, but we can always get over them. There are some drawbacks... Read more

Posted in Parenting and Chronic Illness | By

Jul 11

July 11, 2016

Have YOU Ever Had a Panic Attack?

Have YOU Ever Had a Panic Attack?

Have you ever had a panic attack? The question hung between us like angry, rain-saturated clouds positioning overhead. For me, the answer was obvious. Panic attacks are a common, unfortunate part of battling with Lyme disease and coinfections. But my relationship with panic attacks pre-dates my relationship with Lyme Disease. I have been married twice. Twice I have picked out... Read more

Posted in Anxiety, Chronic Illness and anxiety, Lyme Disease | By

Apr 27

April 27, 2016

5 Things You Need to Know About Lyme Disease

Most of what I know about Lyme I learned one of three ways: Watching Under Our Skin: The Untold Story of Lyme Disease Speaking with my Lyme Literate Physicians (LLMD) and other patients within online support groups. Living my life with Lyme disease I watched Under Our Skin for the first time while sprawled out on an oddly-shaped recliner tilted... Read more

Posted in Chronic Illness and Diagnosis, chronic illness; support, insurance companies, Lyme Disease, Physicians | By

Feb 22

February 22, 2016

How I (almost) Missed The Fight

If I told you how many medical professionals I interact with on some level over the course of an average month, you’d probably spit your coffee out. And since I’m a nice girl who doesn’t want you to have to do that, I’m going to keep it vague. But let’s just say that if going to the doctor was a... Read more

Posted in Chronic Illness and Diagnosis, Physicians, Relationships | By

Feb 11

February 11, 2016

How I Fought To Be A Better Mom

I know everyone thinks their kid is the best, I do. But if you just knew my oldest, I’m certain you’d agree.   He’s such a ridiculously good kid.   This is not something I feel I can take much credit for, as the fiber of Hayden’s being has always been inherently good.   He delights in celebrating people, loving extravagantly,... Read more

Posted in Chronic Illness and Diagnosis, Chronic illness and relationships, Grief, Love, Parenting and Chronic Illness, Relationships | By