Viewing: Life With a Chronic Illness

Aug 7

August 7, 2017

To the Ones Who Let Us Scream It Out When the Bottom Drops Out

To the Ones Who Let Us Scream It Out When the Bottom Drops Out

This week I stood on a wooden platform. Sweaty, eager, teenagers in cut off shorts holding souvenir cups surrounded me. The soundtrack, a cacophony of nervous chatter about what might happen should the coaster become stuck or spontaneously fall apart and the click-click-clack sound of the coaster slowly rising followed by the thrilled screams of riders. My stepdaughter and I... Read more

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Nov 6

November 6, 2016

How to Cultivate Gratitude in the Midst of Hardship

How to Cultivate Gratitude in the Midst of Hardship

2012 was that year.  The Murphey’s Law year.  Everything that could go wrong did, and it took everything we had to survive it…literally. It was the third year of my son’s leukemia treatment, the total duration of which lasted over 3 years.  Additionally, I started out the year with mono and thyroid failure, which I attribute to the enormous stress of parenting... Read more

Posted in Coping, Disability, Faith, Grief, Marriage, Relationships, Self-Care, Special Needs Parenting | By

Oct 24

October 24, 2016

10 Must-Haves for Your Chronic Illness Journey

10 Must-Haves for Your Chronic Illness Journey

A Sense of Humor– Trust me on this one. Maybe you feel more like crying than laughing and I want to be clear––––there is no shame in crying. Furthermore, there is a time for crying. But when you are all cried out, laughter is such good medicine. Laughter has the power to make the seemingly impossible, possible. Laughter pushes back... Read more

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Jun 13

June 13, 2016

{In Which} We All Let Go Of Meeting Others' Expectations

{In Which} We All Let Go Of Meeting Others’ Expectations

About ten or twelve years ago I found myself haunted by a single moment, an act, a decision I’d made hanging out there on the horizon. The memory would creep up on me in the night and dance around in my mind, turning my stomach, rending my heart into pieces over and over again until they fell out my eyes... Read more

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Jun 2

June 2, 2016

What Life With Chronic Illness Is Really Like

“Get well soon!” It's a common saying. All of us spoonies have heard it. But what if you have an illness that you will never recover from? The hardest part of having a chronic illness is that it's FOREVER, or at least for a very long time. Unless your personal miracle comes, your illness will always be with you. There isn’t... Read more

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Jul 13

July 13, 2015

The Pitfalls and Perils of Parenting While Battling Chronic Illness

The Pitfalls and Perils of Parenting While Battling Chronic Illness

As I drive my 15-year-old son to the next extra-curricular activity on the agenda he asks, “Have you heard the latest song by 1-1-6?” and proceeds to crank it at 127 decibels. From the back seat my four-year-old chimes in: “Mommy, why does my hand just have this brown spot on it?” “Mommy, what’s your favorite Disney princess?” “Mommy, why... Read more

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