Viewing: Diagnosis

Jan 30

January 30, 2017

The Dangers of Love on the Wildwood Exit

The Dangers of Love on the Wildwood Exit

You hear a lot about happiness on your wedding day.   He just seems to make her so happy.   The bride was beaming with happiness.   I hope you two live happily ever after.   And whether she realizes it or not, every blushing bride prances down the aisle with her own vision of what her happily ever after... Read more

Posted in Autism, Chronic Illness and Diagnosis, Chronic Life, CVID, Lyme Disease, Marriage | By

Jan 26

January 26, 2017

Give Me Eyes to See in the Darkness

Give Me Eyes to See in the Darkness

My eye doctor was the happiest person I knew. As in unusually excited about his profession and life. So I wasn’t surprised when he proudly told me he had new technology he wanted to use. Retinal imaging provides never seen pictures of the back of the eye which aid in early detection of glaucoma or cataracts. I tried to be... Read more

Posted in Chronic Illness and Diagnosis, Chronic Life | By

Jan 9

January 9, 2017

Meagan's Secret

Meagan’s Secret

Meagan is smart and witty and successful. Meagan is unflappable. She has three children, who are so cute you could eat them with a spoon as well as a handsome, successful husband. She is living the suburban American dream. But not long ago Meagan told me a secret. She has Hepatitis B. A blood-borne disease, often considered an STD. She... Read more

Posted in chronic illness; support, Rare Disease | By

Nov 17

November 17, 2016

5 Moments in My Chronic Illness Journey That Changed Me

5 Moments in My Chronic Illness Journey That Changed Me

We all have moments in our journey that change us, for better or for worse. Maybe these moments grow us or educate us on the ways of the world. Perhaps, they teach us that life is painful or people are not to be trusted. Some moments might teach us there is beauty and living yet to come. Others still, might... Read more

Posted in Chronic Illness and Diagnosis, Chronic Life | By

Sep 26

September 26, 2016

Is Accepting Our Diagnosis a Good Thing or Bad Thing?

Is Accepting Our Diagnosis a Good Thing or Bad Thing?

Like many, the early stages of my diagnoses were often fraught with a rapid, fluid exchange of emotions and thought processes. One day they were the end of the world and the next they were maybe not so bad after all. However, with each diagnosis, my processing window shortened, and I steadied myself more quickly. I’ve always been a dichotomy.... Read more

Posted in Chronic Illness and Diagnosis, CVID | By

Jul 28

July 28, 2016

To Melanie, from Your Future Chronic Illness

To Melanie, from Your Future Chronic Illness

You’re an adult now, newly 18. You’ll leave for college soon and it won’t be easy. The adjustment won’t be too bad, you’ll make a few friends and earn good grades. But as the year progresses, the real difficulty begins. When you can’t use the restroom without crying because of pain and your mom comes to pick you up to... Read more

Posted in Caregivers, Chronic Illness and anxiety, Chronic Illness and Diagnosis, Chronic Life | By

Jun 23

June 23, 2016

Anniversary of a Diagnosis

Anniversary of a Diagnosis

I’m struggling. Do I write about the upcoming date, or do I let it pass? Do I talk about this day – this huge day in my personal history, or do I let it sit under the proverbial leaden rock in the back of my mind?  Should I just coast through the day, and into tomorrow? Reflection has led me... Read more

Posted in Anger, chronic illness; support, Faith | By

Jun 2

June 2, 2016

What Life With Chronic Illness Is Really Like

“Get well soon!” It's a common saying. All of us spoonies have heard it. But what if you have an illness that you will never recover from? The hardest part of having a chronic illness is that it's FOREVER, or at least for a very long time. Unless your personal miracle comes, your illness will always be with you. There isn’t... Read more

Posted in chronic illness; support, Chronic Life | By

May 26

May 26, 2016

Five Things People with PTSD Want You to Know

I had spent a lifetime keeping memories behind closed doors.  I thought I had frozen them all in my heart to keep them contained. But trauma thaws. I felt like I betrayed my family code. I felt weak.  I coped in so many different ways to stay numb and avoid the feelings that are stored in the marrow of your... Read more

Posted in Anxiety, Love, Mental Illness, PTSD | By

Apr 27

April 27, 2016

5 Things You Need to Know About Lyme Disease

Most of what I know about Lyme I learned one of three ways: Watching Under Our Skin: The Untold Story of Lyme Disease Speaking with my Lyme Literate Physicians (LLMD) and other patients within online support groups. Living my life with Lyme disease I watched Under Our Skin for the first time while sprawled out on an oddly-shaped recliner tilted... Read more

Posted in Chronic Illness and Diagnosis, chronic illness; support, insurance companies, Lyme Disease, Physicians | By