Viewing: CVID

Aug 3

August 3, 2017

The Text of Shame

The Text of Shame

It’s your best friend’s birthday. You bought tickets to the show she’s been wanting to see for the last year and promised you would go no matter how sick you got in the hours leading up to your departure. Leaning into those words, your dear friend has skipped both the 24-hour and 4-hour check-in texts. She’s oblivious to the raging... Read more

Posted in CVID, Rare Disease, Relationships | By

Jan 30

January 30, 2017

The Dangers of Love on the Wildwood Exit

The Dangers of Love on the Wildwood Exit

You hear a lot about happiness on your wedding day.   He just seems to make her so happy.   The bride was beaming with happiness.   I hope you two live happily ever after.   And whether she realizes it or not, every blushing bride prances down the aisle with her own vision of what her happily ever after... Read more

Posted in Autism, Chronic Illness and Diagnosis, Chronic Life, CVID, Lyme Disease, Marriage | By

Jan 16

January 16, 2017

The Year I Began Really Living (Again)

The Year I Began Really Living (Again)

Sometimes people choose a word or a phrase to focus on in the year ahead. Others make goals or resolutions. Others still, like precious friends of mine wrote out a manifesto, guiding principles they sought to live by for years to come. In years past, these are things I’ve given tremendous credence to, making room to reflect on the year... Read more

Posted in Self-Care | By

Sep 26

September 26, 2016

Is Accepting Our Diagnosis a Good Thing or Bad Thing?

Is Accepting Our Diagnosis a Good Thing or Bad Thing?

Like many, the early stages of my diagnoses were often fraught with a rapid, fluid exchange of emotions and thought processes. One day they were the end of the world and the next they were maybe not so bad after all. However, with each diagnosis, my processing window shortened, and I steadied myself more quickly. I’ve always been a dichotomy.... Read more

Posted in Chronic Illness and Diagnosis, CVID | By

Sep 8

September 8, 2016

How to Maintain Deep Friendships in the Midst of Chronic Illness

How to Maintain Deep Friendships in the Midst of Chronic Illness

We’ve all seen and/or experienced it. Chronic illness seems to rob us of some of our most treasured friendships. Maybe we simply lack the time to nurture those relationships or that particular friend loses interest in what’s quickly become a complicated and taxing relationship. How do we maintain lasting, meaningful friendships in the midst of chronic illness? Today, my dear... Read more

Posted in Chronic illness and relationships, chronic illness; support | By

Feb 22

February 22, 2016

How I (almost) Missed The Fight

If I told you how many medical professionals I interact with on some level over the course of an average month, you’d probably spit your coffee out. And since I’m a nice girl who doesn’t want you to have to do that, I’m going to keep it vague. But let’s just say that if going to the doctor was a... Read more

Posted in Chronic Illness and Diagnosis, Physicians, Relationships | By