Viewing: CVID
August 22, 2017
But Seriously, Stop Kissing Me
My husband has an immune system made of steel. I’ve often wondered if he has a stash of kryptonite hidden underneath the bed he isn’t telling me about. A few years ago, when little red dots appeared first on the tips of my fingers and then journeyed up my palms, I told myself I was having a reaction to all... Read morePosted in Chronic illness and relationships, Parenting and Chronic Illness, Relationships | By Stacey Philpot
August 3, 2017
The Text of Shame
It’s your best friend’s birthday. You bought tickets to the show she’s been wanting to see for the last year and promised you would go no matter how sick you got in the hours leading up to your departure. Leaning into those words, your dear friend has skipped both the 24-hour and 4-hour check-in texts. She’s oblivious to the raging... Read morePosted in CVID, Rare Disease, Relationships | By Stacey Philpot
January 30, 2017
The Dangers of Love on the Wildwood Exit
You hear a lot about happiness on your wedding day. He just seems to make her so happy. The bride was beaming with happiness. I hope you two live happily ever after. And whether she realizes it or not, every blushing bride prances down the aisle with her own vision of what her happily ever after... Read morePosted in Autism, Chronic Illness and Diagnosis, Chronic Life, CVID, Lyme Disease, Marriage | By Stacey Philpot
January 16, 2017
The Year I Began Really Living (Again)
Sometimes people choose a word or a phrase to focus on in the year ahead. Others make goals or resolutions. Others still, like precious friends of mine wrote out a manifesto, guiding principles they sought to live by for years to come. In years past, these are things I’ve given tremendous credence to, making room to reflect on the year... Read morePosted in Self-Care | By Stacey Philpot
September 26, 2016
Is Accepting Our Diagnosis a Good Thing or Bad Thing?
Like many, the early stages of my diagnoses were often fraught with a rapid, fluid exchange of emotions and thought processes. One day they were the end of the world and the next they were maybe not so bad after all. However, with each diagnosis, my processing window shortened, and I steadied myself more quickly. I’ve always been a dichotomy.... Read morePosted in Chronic Illness and Diagnosis, CVID | By Stacey Philpot
September 8, 2016
How to Maintain Deep Friendships in the Midst of Chronic Illness
We’ve all seen and/or experienced it. Chronic illness seems to rob us of some of our most treasured friendships. Maybe we simply lack the time to nurture those relationships or that particular friend loses interest in what’s quickly become a complicated and taxing relationship. How do we maintain lasting, meaningful friendships in the midst of chronic illness? Today, my dear... Read morePosted in Chronic illness and relationships, chronic illness; support | By Stacey Philpot
February 22, 2016
How I (almost) Missed The Fight
If I told you how many medical professionals I interact with on some level over the course of an average month, you’d probably spit your coffee out. And since I’m a nice girl who doesn’t want you to have to do that, I’m going to keep it vague. But let’s just say that if going to the doctor was a... Read morePosted in Chronic Illness and Diagnosis, Physicians, Relationships | By Stacey Philpot