Viewing: Chronic Illness

Mar 19

March 19, 2018

5 No Good Responses to Your Chronic Illness Diagnosis

5 No Good Responses to Your Chronic Illness Diagnosis

How will people respond when we share the most intimate parts of ourselves with them? There’s simply no way to know for sure. It’s almost as though we’re standing in front of them completely nude awaiting our evaluation. And while, I don’t make a habit of standing in front of new acquaintances in the nude that is precisely how it... Read more

Posted in Chronic Life | By

Feb 12

February 12, 2018

Moving On-Grieving What Was and Embracing What Will Be

Moving On-Grieving What Was and Embracing What Will Be

Growing up, moving was a semiannual occurrence. Sometimes the news of our impending relocation was crushing. Perhaps, my latest love interest had just professed his affection, or I had secured the lead role in the school play (this was never the case for me, but once was for my older brother.) Other times, a move was welcome news, a reprieve... Read more

Posted in Chronic Illness and Diagnosis | By

Aug 17

August 17, 2017

3 Things I Want You to Remember on Bad Days

3 Things I Want You to Remember on Bad Days

Just when we think we might be getting a handle on things, our latest diagnosis or setback, we find ourselves reeling. Be it a flare, a concerned call from the doctor, a flagged set of numbers in our weekly blood work, or a day when the pain is seemingly unbearable, it can be hard to remember things might ever be... Read more

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Aug 10

August 10, 2017

How to Find the Light When It All Goes Dark

How to Find the Light When It All Goes Dark

Today started out on an aggravating note. The repair guy at the house there to fix some damage from our lightning strike showed up late, causing me to run late for a meeting with an editor. My head has hurt for days, and it decided to pick today to amp up the pain to ten. There were some troubles with... Read more

Posted in Chronic illness and relationships, chronic illness; support, Chronic Life, Relationships | By

Jul 31

July 31, 2017

Learning to Love Our Broken Bodies

Learning to Love Our Broken Bodies

Some might say my body has been through a lot. Yesterday, I cleaned out my dresser drawers and found five pairs of hospital issue no-slip socks. I also discovered clothing in sizes 4-16, old nursing bras, the remote to my bladder pacemaker, and a bikini that would now fit one-third of my body. It’s hard to fathom the number of... Read more

Posted in Chronic Illness and body image | By

Jun 15

June 15, 2017

3 Truths About Relationships in the Belly of the Cave

3 Truths About Relationships in the Belly of the Cave

If like me, you’ve known sickness of any kind, or even simply walked through a particularly difficult time in your life, you’ve most likely also experienced a myriad of responses from those close to you. Maybe the people you least anticipated being the heroes in your story showed up on the scene and continue to show time and time again. More... Read more

Posted in chronic illness; support | By

Jun 1

June 1, 2017

When We Drown in Our Not Enoughness

When We Drown in Our Not Enoughness

“Not to be mean, Mommy, but Daddy is nicer than you.” These are the words my five-year-old daughter graces me with as she fills our minivan with her endless chatter. So far, I’ve been chastised for my lack of passion in response, my tendency to stare blankly ahead, and general lack of entertainment value. I wonder silently if Daddy might... Read more

Posted in Parenting and Chronic Illness | By

May 22

May 22, 2017

When the Greatest Challenge Is Believing for More

When the Greatest Challenge Is Believing for More

There’s a verse in scripture where a man cries out, “Lord I believe, help my unbelief!” This broken man is in tears as his soul cries out. Desperately, he wants to believe all things are possible. He wants to believe for more. He doesn’t want to be held captive by fear. Yet, his pain is so real. Perhaps, it’s more... Read more

Posted in Faith, Gratitude | By

May 8

May 8, 2017

5 Tips for Working While Chronically Ill

5 Tips for Working While Chronically Ill

Before we go any further if you have a chronic illness and you’re working I want to applaud you. Chronic illness travels with us wherever we go. It doesn’t care about deadlines or dreams or unreasonable bosses. So if you’re still working, you’re clearly handling life like a boss. On the flip side, if you came to a point where you... Read more

Posted in Chronic Life, Disability | By

May 4

May 4, 2017

When You Aren’t Sure You Can Live Like This

When You Aren’t Sure You Can Live Like This

Like a bird I soared, high above the clouds, soaking in the sun, inhaling the sheer goodness of life. I breathed in possibilities and exhaled delight. Surely, the sun was a more golden hue than it had ever been before. Was that a lullaby of babies laughing I heard? All was right with the world. And then I plummeted to... Read more

Posted in Chronic Life, Coping 101, Rare Disease | By