Mar 16

March 16, 2017

What Lent Taught Me About Chronic Illness

What Lent Taught Me About Chronic Illness

I grew up in a church that didn’t celebrate Lent. We were big on Christmas. BIG. Like, goody-bags-for-all-the-kids-and-real-animals-in-the-Christmas-pageant big. Lent was something my Catholic grandmother participated in, and to be honest, we all thought she was kinda weird. She’d fast and pray and take extra time after mass to kneel and light a candle. As a young girl, I couldn’t... Read more

Posted in Chronic Life, Faith | By

Mar 13

March 13, 2017

What Traveling to Europe Taught Me About Ableism

What Traveling to Europe Taught Me About Ableism

The majority of my chronically ill life has been sheltered, encapsulated by the tiny group of people who love me most. These are the people who’ve done the hard work of learning what loving me looks in this time and space. They’ve learned my body’s rhythms and queues. For the most part, they come into our times together eyes wide... Read more

Posted in Ableism | By

Mar 9

March 9, 2017

Mastering the Newest Monster on the Block

Mastering the Newest Monster on the Block

There’s a monster in my brain. He’s always there. He never goes away, no matter how much I beg, or how nicely I ask. There’s no reasoning with him. I really prefer my monsters to be of the more reasonable variety – the kind that go away. See, there have been other monsters up there before. I’ve banished them, though.... Read more

Posted in Anxiety | By

Mar 6

March 6, 2017

What to do when Chronic Illness Leaves You Feeling Lost, Alone, & Confused

What to do when Chronic Illness Leaves You Feeling Lost, Alone, & Confused

As a four-year-old girl, I once peed my pants while hiding inside a circular rounder of clothing at our local Wal-Mart store. Having been somehow separated from my mom for what felt like an eternity, I’d become increasingly afraid of all the unknowns around me. Everything felt foreign, menacing, and overwhelming. As time passed, the idea that I had been... Read more

Posted in Chronic Life | By

Mar 1

March 1, 2017

Did I Take a Large Blue Pill? - a Pill Drill Review

Did I Take a Large Blue Pill? – a Pill Drill Review

“I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. “ Picture me, sitting at the dinner table with my wonderful family, pill bottle in hand, confused look on my face,... Read more

Posted in Medications | By

Feb 27

February 27, 2017

Love Is Blind and Fabulous

Love Is Blind and Fabulous

I’ve long since considered myself defective. I picture my body as something purchased from the bottom of a clearance bin at your local Dollar Store. Somewhat like the twenty-five-cent toy you buy your child as a form of bribery to get them quietly through the check-out line, knowing full well it will break into a thousand tiny pieces before it’s... Read more

Posted in Chronic Life, Love, Relationships | By

Feb 23

February 23, 2017

Twenty More Brunette Strands

Twenty More Brunette Strands {On Redefining Best}

Twenty more brunette strands. The white of the pillowcase was speaking an unwelcome truth. Though the official word was that this cocktail administered this time in this way probably wouldn’t cause the hair loss of rounds one or two….the proof was on the cotton percale.  Here we go again. Disappointment was knocking and once again would require emotional energy to answer.... Read more

Posted in Cancer, Chronic Life | By

Feb 20

February 20, 2017

What Do You Treasure Most?

What Do You Treasure Most?

“What do you treasure most?” This was the question gingerly tossed out among friends. A smirk crossed my face as I listened to the first answer. Ah, young love. Surely, only it could drive a grown man to invest hours in hand painting a heart-covered teapot for his love? Then a full on smile broke out, such beauty. Yes, I... Read more

Posted in chronic illness; support, Love | By

Feb 16

February 16, 2017

The Warrior’s Crown

The Warrior’s Crown

I’m a fighter.  At least, that’s what I’ve told myself over the years.  I fight in the sense that I won’t let you down or I will not buckle under the external pressures of life.  I will not be deterred.  I will do what needs to be done, what must be done.  But would that persona translate to battlefields of... Read more

Posted in Caregivers, Chronic Life, Love | By

Feb 13

February 13, 2017

How One "Spoonie's" Bravery Healed My Heart

How One “Spoonie’s” Bravery Healed My Heart

Some people open their mouths and change your whole world. They tell their story and suddenly your fractured heart begins to heal itself. Confusion and isolation, your long-time companions go out for a smoke break. Someone is singing your heart’s song when you didn’t even know they knew the words. So this is what it feels like? To be seen,... Read more

Posted in Chronic Illness and Diagnosis, chronic illness; support | By