Viewing: chronic illness; support

Nov 28

November 28, 2016

People-The Problem AND the Solution

People: The Problem AND The Solution

That’s me in front, on my 3rd birthday. With me are my brothers Mike and Gary, and uncle Todd in the middle. Todd was more like a brother, as he was only a year older than Mike and spent lots of time with us. I am the lone survivor from this picture. (Cheerful post, right? Hang in there, we’ll turn... Read more

Posted in Anxiety, chronic illness; support, Coping, Depression, Isolation, Love, Relationships, Self-Care | By

Nov 23

November 23, 2016

3 Ways to Seek Out Gratitude in the Difficult Times

3 Ways to Seek Out Gratitude in the Difficult Times

Sometimes I get angry and super down about my health situation. That’s ok. Keeping a positive outlook is clearly a better option than having a negative one. Having a mostly positive outlook doesn’t mean that everything is perfect all of the time, it only means that it is possible to be positive and strong while also being human and honest.... Read more

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Nov 3

November 3, 2016

How to Keep on Living When the Pain Doesn't End

How to Keep on Living When the Pain Doesn’t End

It has been four months since Grace came down with a virus that has turned into a nightmare of doctor appointments, tests, and non-answers, as she continues to battle pain and fatigue. Her head and stomach hurt constantly, she gets tired easily, school seems to exacerbate it all (though whether that is physical or emotional, I can’t quite work out),... Read more

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Oct 20

October 20, 2016

An Open Letter to the Chronically Ill

An Open Letter to the Chronically Ill

It is my honor to love and serve you. While it is true I don’t understand your medical condition; I can’t relate to physically not being able to get out of bed each day, and I don’t comprehend your insecurity of not being enough. I do want to tell you that you are valued. You are appreciated. You are enough.... Read more

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Oct 6

October 6, 2016

Why People Don’t Understand Your Chronic Illness

Why People Don’t Understand Your Chronic Illness

Guest post from Boni Wagner-Stafford, Friends With Fibro “What other people think of you is none of your business.”  ― Regina Brett I love this quote. It says so much that is true, that is representative of our evolution into true adulthood when we finally learn we can stop caring what other people think. Those of us with a chronic illness... Read more

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Sep 22

September 22, 2016

The Answer to the Question, "How Are You?"

The Answer to the Question, “How Are You?”

How are you feeling? It’s got to be the most loaded question out there. As a chronic illness fighter/warrior/survivor I don’t really know how to answer that question. Heck, I don’t even really know what to call myself in terms of chronic illness. Probably not. Not many of the spoonies I know do. It’s too much to get started with... Read more

Posted in chronic illness; support, Chronic Life | By

Sep 8

September 8, 2016

How to Maintain Deep Friendships in the Midst of Chronic Illness

How to Maintain Deep Friendships in the Midst of Chronic Illness

We’ve all seen and/or experienced it. Chronic illness seems to rob us of some of our most treasured friendships. Maybe we simply lack the time to nurture those relationships or that particular friend loses interest in what’s quickly become a complicated and taxing relationship. How do we maintain lasting, meaningful friendships in the midst of chronic illness? Today, my dear... Read more

Posted in Chronic illness and relationships, chronic illness; support | By

Aug 22

August 22, 2016

"I Have No One" Responding to the Cries of the Sick

“I Have No One” Responding to the Cries of the Sick

I sat with legs crisscrossed applesauce, eating a bowl of honeycombs with a shameful ferocity before preschool pick-up would end these heavenly moments of silence. Skimming the cable guide’s offerings, I settled on the noonday news. Instantly, an invisible hand was reaching from the television, thrusting open my chest and extracting my heart with skillful precision. Instead of a red... Read more

Posted in chronic illness; support, Isolation, Relationships | By

Aug 18

August 18, 2016

How to Cope With the Train Wreck of New Diagnosis

How to Cope with the Train Wreck of New Diagnosis

As I lay in the darkness, my fingers poised on the keys of my laptop, tears run down my cheeks  as I listen to the sound of my son’s feeding pump a few feet away–a constant reminder that my normal isn’t really normal at all. In a recent trip to Helen DeVos Children’s Hospital, I sat in a chair watching... Read more

Posted in Caregivers, Chronic Illness and Diagnosis, chronic illness; support, Parenting and Chronic Illness | By

Aug 11

August 11, 2016

Licking the (Yummy) Filling of an Oreo Sandwich Cookie

Licking the (Yummy) Filling of an Oreo Sandwich Cookie

Out of all that happened this past week, three things stand out: 1) I had to take my car into the repair shop for the nth time this month, due to the inadvisability of driving with the engine light on, 2) My husband and I watched a gorgeous sunset (from our kayaks) across a beautiful little private lake during our... Read more

Posted in Chronic Illness and Pain, chronic illness; support, Chronic Life, Faith, Rheumatoid Arthritis | By