Viewing: chronic illness; support

Apr 24

April 24, 2017

When Kindness Meets You Where You Are

When Kindness Meets You Where You Are

Some of my fondest memories as a child include the year I was in an elementary school classroom just down the hall from my little brother Ben’s kindergarten classroom. I got to poke my head in and check on him periodically and walk him home from school. Yes, some of the older kids mocked me for this practice. No, it... Read more

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Apr 10

April 10, 2017

When Chronic Illness Leaves You in the Darkness

When Chronic Illness Leaves You in the Darkness

One minute you sit within the light. Comfort and companionship surround you. Perhaps, it’s a Friday night tradition, hosting dinner at your house, your closest friends laughing and dining together. The climate of the room adds to the perfection of the night. It’s cool, but not too cool, a welcome reprieve from the punishing heat outside. The food and fellowship... Read more

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Feb 20

February 20, 2017

What Do You Treasure Most?

What Do You Treasure Most?

“What do you treasure most?” This was the question gingerly tossed out among friends. A smirk crossed my face as I listened to the first answer. Ah, young love. Surely, only it could drive a grown man to invest hours in hand painting a heart-covered teapot for his love? Then a full on smile broke out, such beauty. Yes, I... Read more

Posted in chronic illness; support, Love | By

Feb 13

February 13, 2017

How One "Spoonie's" Bravery Healed My Heart

How One “Spoonie’s” Bravery Healed My Heart

Some people open their mouths and change your whole world. They tell their story and suddenly your fractured heart begins to heal itself. Confusion and isolation, your long-time companions go out for a smoke break. Someone is singing your heart’s song when you didn’t even know they knew the words. So this is what it feels like? To be seen,... Read more

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Feb 6

February 6, 2017

10 Ways You Can Help Me on the Bad Days

10 Ways You Can Help Me on the Bad Days

Living with chronic illness is hard. There are days the pain, fatigue, and every-day-ness of it is too much to push through. A huge part of chronic illness, at least for me, is pushing through because giving up isn’t a choice, but there are some days when it’d be easier than others to throw in the towel. Your friends want to help.... Read more

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Feb 2

February 2, 2017

Learning to Live in Times of War and Famine of the Soul

Learning to Live in Times of War and Famine of the Soul

I sat before the doctor; equal parts wise and kind, spritely and gentle. He has one tuft of white hair that shoots straight up while the others have been tamed. Somehow this makes me love him all the more. His spectacles sit low on his nose as he studies my most recent labs. He is eager to get to work.... Read more

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Jan 23

January 23, 2017

Sickness Is Your Superpower

Sickness Is Your Superpower

You drink in the warmth of the sun on your skin, your hair dancing in the breeze, the sound of children laughing in the background. Somewhere, someone is grilling steaks for dinner. The scent is nothing less than glorious and today, you are in love with life. Yes, your joints are just as swollen as they were yesterday and your... Read more

Posted in Chronic illness and relationships, chronic illness; support, Chronic Life | By

Jan 20

January 20, 2017

Can I Have A New Mom?

Can I Have a New Mom?

We sat around our well-worn kitchen table, my four-year-old excitedly reporting on the fun she’d had that day at Grandma and Grandpa’s house. There had been nature walks and scavenger hunts, pool-time and even bowling. I strained to hold my body up and utter whole sentences in response while we ate the take-out my husband had purchased on the way... Read more

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Jan 9

January 9, 2017

Meagan's Secret

Meagan’s Secret

Meagan is smart and witty and successful. Meagan is unflappable. She has three children, who are so cute you could eat them with a spoon as well as a handsome, successful husband. She is living the suburban American dream. But not long ago Meagan told me a secret. She has Hepatitis B. A blood-borne disease, often considered an STD. She... Read more

Posted in chronic illness; support, Rare Disease | By

Jan 5

January 5, 2017

The One Who Comes to Steal

The One Who Comes to Steal

Have you ever fallen victim to a robbery? Perhaps while you were slumbering, one foot thrust outside of the covers and one resting peacefully within oblivious to the deafening sounds of your partner’s ear piercing snores, someone approached. A masked man shattered glass and your sense of safety all in one fell swoop. They ransacked your home in search of... Read more

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