Viewing: Rare Disease
May 4, 2017
When You Aren’t Sure You Can Live Like This
Like a bird I soared, high above the clouds, soaking in the sun, inhaling the sheer goodness of life. I breathed in possibilities and exhaled delight. Surely, the sun was a more golden hue than it had ever been before. Was that a lullaby of babies laughing I heard? All was right with the world. And then I plummeted to... Read morePosted in Chronic Life, Coping 101, Rare Disease | By Stacey Philpot
January 12, 2017
Fake It, Because You Have It Make It.
I’m chronically ill. I have, among other things, an extremely rare form of MS, Trigeminal Neuralgia, and many forms of chronic migraine and headache. It makes day to day living a challenge, but a challenge I graciously accept. Certainly, don’t want to be dead. I still manage to work part-time. I don’t have any other choice since it’s the only... Read morePosted in Disability, Rare Disease | By Stacey Philpot
January 9, 2017
Meagan’s Secret
Meagan is smart and witty and successful. Meagan is unflappable. She has three children, who are so cute you could eat them with a spoon as well as a handsome, successful husband. She is living the suburban American dream. But not long ago Meagan told me a secret. She has Hepatitis B. A blood-borne disease, often considered an STD. She... Read morePosted in chronic illness; support, Rare Disease | By Stacey Philpot