Viewing: Physicians

Jul 25

July 25, 2016

Significance and Relationship, Knowing You Matter

Significance and Relationship, Knowing You Matter

As a young girl, I engaged in every variety of romantic future telling. If you could write the name of a cute boy, a house, a number of children and then fold a paper until it successfully predicted your future, I had done it at least a thousand times. In fact, I’d probably set up a profitable business in my... Read more

Posted in Chronic illness and relationships, chronic illness; support, Chronic Life, Physicians, Relationships | By

Jul 14

July 14, 2016

Dear Husband, I wish you knew how strong you are.

Dear Husband, I wish you knew how strong you are

Dear Husband, I wish you knew how strong you are. I wish you could see yourself through my eyes. Every day I wake up and watch you defy odds. The way you live your life is so much more than popping a pill or taking a shot. I don’t know any other 10-year-old boy who has announced to his mother... Read more

Posted in Caregivers, chronic illness; support, Love, Marriage, Physicians, Relationships | By

Jun 9

June 9, 2016

That Faithful Friend

That Faithful Friend

Befriending those with rare and chronic illnesses is not for the faint of heart. Your job description—should you choose to accept it—will include: walking with us through the plentiful highs and lows, learning a new language (the language of our illness), grieving alongside us, possibly purchasing a medical dictionary, no longer pretending it’s all okay, and last (but not least)... Read more

Posted in Caregivers, Chronic illness and relationships, chronic illness; support, Physicians, Relationships | By

Apr 27

April 27, 2016

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5 Things You Need to Know About Lyme Disease

Most of what I know about Lyme I learned one of three ways: Watching Under Our Skin: The Untold Story of Lyme Disease Speaking with my Lyme Literate Physicians (LLMD) and other patients within online support groups. Living my life with Lyme disease I watched Under Our Skin for the first time while sprawled out on an oddly-shaped recliner tilted... Read more

Posted in Chronic Illness and Diagnosis, chronic illness; support, insurance companies, Lyme Disease, Physicians | By

Mar 24

March 24, 2016

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The Good Doctor

Before I went in, I decided not to bring the entire laundry list of things that I’ve noticed or been worried about over the last decade or so. That’s how long it’s been since I’ve had a primary care physician. It’s been hard for me to know what is worth seeking medical attention for. If I just slept more, would... Read more

Posted in Chronic Illness and Diagnosis, Physicians | By

Mar 7

March 7, 2016

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I Know More Than You Do

I really appreciate doctors. They are active scientists, trying to discern what is really going on in the complexity of the human body. They spent many years getting educated in this area and genuinely want to help and solve problems. They also (the best ones) have learned how to be comforters and supporters. One of my best friends is a... Read more

Posted in Chronic Illness and Diagnosis, chronic illness; support, Physicians | By

Feb 22

February 22, 2016

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How I (almost) Missed The Fight

If I told you how many medical professionals I interact with on some level over the course of an average month, you’d probably spit your coffee out. And since I’m a nice girl who doesn’t want you to have to do that, I’m going to keep it vague. But let’s just say that if going to the doctor was a... Read more

Posted in Chronic Illness and Diagnosis, Physicians, Relationships | By

Jan 21

January 21, 2016

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The Journey to Finding Help

I have hereditary Fibromyalgia, but for most of my life, I didn’t know that.  I had been to many doctors. None of them knew what was wrong. I presented with different symptoms at different times, but one thing remained the same— I was always in pain. I have had numerous hospital stays, and terribly painful tests run to no avail.... Read more

Posted in Chronic Illness and Diagnosis, Chronic Illness and Pain, chronic illness; support, Physicians | By

Jan 18

January 18, 2016

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When its “All in Your Head”

You’ve been battling soul-crushing symptoms for months now. Desperate for relief, and terrified of the answers you’ve somehow managed to wait the agonizing three months it’s taken to see the specialist your primary care physician referred you to. After a battery of painful, expensive and frightening tests, it’s time to go over the results. The specialist looks you in the eye... Read more

Posted in Chronic Illness and anxiety, Chronic Illness and Diagnosis, Physicians | By

Dec 6

December 6, 2015

TILL HEALTH DO US PART-2

Till Health Do Us Part: Finding Your Medical Team

For those of us whose bodies are somehow impaired, there are few things that will impact our quality of life like the people who make up our care team. These decisions we make about who to entrust our bodies, our health, our very lives to are not to be made lightly. And yet, in the beginning, I did. In the... Read more

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