Viewing: Parenting and Chronic Illness

Apr 11

April 11, 2016

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Meeting Others In Their Pain

Today, the five of us sat at the table, eating lunch and talking about death. Sometimes laughing and at other times in tenuous, heavy tones— we talked about what we’d want our funerals to look like and how we felt about the ones we’d been to. I’m not sure how the conversation led us to this place, but I’m also... Read more

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Mar 31

March 31, 2016

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Our Journey Back: My Teenage Daughter’s Battle with Anxiety

She was only 16, but she was convinced she was having a heart attack. Although I assured her she was a healthy young woman and it was highly unlikely she had heart problems, she was terrified something was seriously wrong. From her repeated visits to online medical sites, a practice we had teased her about for years, she recognized all... Read more

Posted in Anxiety, Caregivers, Parenting and Chronic Illness | By

Mar 21

March 21, 2016

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My Son Is Not Autism

I called my son over to the couch and asked him to sit with me.   “What did you need Mom? Are you writing a new post?” my son asked inquisitively.   I found myself getting nervous, “I wanted to write a post… about you.” “Me?! What is it about?” He now seemed to be bubbling with anticipation.   “I... Read more

Posted in Autism, Caregivers, Parenting and Chronic Illness | By

Mar 14

March 14, 2016

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Dear New Autism Mama,

Dear New Autism Mama,   You’ve never met me, but I think we might know each other a little. If you come sit next to me for a bit, you’ll find we have something in common.   You see, I’ve been there.   It probably started with a funny feeling. I know that feeling. It almost feels like a little... Read more

Posted in Autism, Caregivers, Chronic Illness and Diagnosis, Parenting and Chronic Illness | By

Feb 11

February 11, 2016

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How I Fought To Be A Better Mom

I know everyone thinks their kid is the best, I do. But if you just knew my oldest, I’m certain you’d agree.   He’s such a ridiculously good kid.   This is not something I feel I can take much credit for, as the fiber of Hayden’s being has always been inherently good.   He delights in celebrating people, loving extravagantly,... Read more

Posted in Chronic Illness and Diagnosis, Chronic illness and relationships, Grief, Love, Parenting and Chronic Illness, Relationships | By

Feb 4

February 4, 2016

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When You Need a Little More Mischief in Your Life

Remember when we were fun? When we laughed out loud, stayed up late and talked about more than symptoms?   Remember when we were known to cause a little mischief now and then and we weren’t the least bit sorry?   I miss us.   You too, huh?   What if it didn’t have to be this way? I mean,... Read more

Posted in Enjoyable Nonsense, Parenting and Chronic Illness, Relationships | By

Feb 1

February 1, 2016

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When No One Wants To Build a Snowman

Quieres hacer un muñeco?   Don’t speak Spanish? Maybe the English words will be much, much more familiar to you. “Do you wanna build a snowman . . .” Yeah, sorry. Now the song is stuck. I have three daughters, and they (and I) loved Frozen so much the youngest really did learn this song in Spanish. Whether or not... Read more

Posted in Grief, Mental Illness, Parenting and Chronic Illness, Relationships | By

Jan 23

January 23, 2016

Can I Have A New Mom?

We Don’t Get to Pick

Yesterday was hard.   I just need to stick a stake in the cold, hard ground and mark that from the start.   Not so much because of what happened, as much as how it wrecked me.   From the time Avery was born, when I saw that fleshly little girl and took her in with majestic awe and wonder,... Read more

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Jan 7

January 7, 2016

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Broken Together

How I wish we could go back to simpler times Before all our scars and all our secrets were in the light Now on this hallowed ground, we’ve drawn the battle lines Will we make it through the night? It’s going to take more much more than promises this time Only G-d can change our minds   Maybe you and... Read more

Posted in Chronic illness and relationships, chronic illness; support, Grief, Love, Marriage, Parenting and Chronic Illness | By

Oct 15

October 15, 2015

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10 Perks of Being 36 (and sick)

You’ve figured out by now there’s no time to waste. These kids you made are growing up fast and there’s nothing you can do about it. They don’t really care if you like it or not. You know that there’s no promise of tomorrow. You’ve got one chance to make this life count and you fully intend on MAKING IT... Read more

Posted in Chronic Illness and body image, Chronic illness and relationships, chronic illness; support, Parenting and Chronic Illness | By