Viewing: Parenting and Chronic Illness

Sep 19

September 19, 2016

How to Deal When Your Child Prays for a Normal Parent

How to Deal When Your Child Prays for a Normal Parent

It’s been a hard week, and yet, it’s only half way through. You know those kinds of weeks, right? Where each morning you wake up and think, “Today, has to be Friday, right?” But somewhere someone is replaying the same dreadful Tuesday over and over again like a modern-day groundhog’s day. For me, a major culprit has been a particularly... Read more

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Sep 1

September 1, 2016

The Roller Coaster of Life with a Chronically Ill Parent

The Roller Coaster of Life with a Chronically Ill Parent

Growing up is a roller coaster, and living with a parent with a chronic illness is another loop and turn to add to that roller coaster. My stepmom has an illness that is a major disadvantage to her way of living. Having this illness creates bumps in the road, but we can always get over them. There are some drawbacks... Read more

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Aug 29

August 29, 2016

3 Epic Fails to Avoid

3 Epic Fails to Avoid

My goal today is to ensure you that you are in fact handling your chronic illness and life in general far better than you think you are. As evidence, I’ll introduce to you a horrifyingly embarrassing collection of personal epic fails from the last several weeks. This is how great my love for you is. I think we’ve talked about... Read more

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Aug 18

August 18, 2016

How to Cope With the Train Wreck of New Diagnosis

How to Cope with the Train Wreck of New Diagnosis

As I lay in the darkness, my fingers poised on the keys of my laptop, tears run down my cheeks  as I listen to the sound of my son’s feeding pump a few feet away–a constant reminder that my normal isn’t really normal at all. In a recent trip to Helen DeVos Children’s Hospital, I sat in a chair watching... Read more

Posted in Caregivers, Chronic Illness and Diagnosis, chronic illness; support, Parenting and Chronic Illness | By

Aug 15

August 15, 2016

Welcome to the Mommy Wars

Welcome to the Mommy Wars

It’s that time again Moms. I hope you’ve trained well. Soon you’ll be scored on your willingness to bake cupcakes and attend field trips. Your fundraising skills will weigh heavily on your rankings and sharp and motivated newcomers may threaten your position within the herd. May the odds be ever in your favor. Just last night, I attended my daughter’s preschool... Read more

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Jul 18

July 18, 2016

How Chronic Illness Changes Our Perspective

How Chronic Illness Changes Our Perspective

We spend our days, our years perhaps, searching for answers, for a word that explains what’s happening in our bodies or the body of our child, our sister, our mother, our partner. We believe, we hope, we long for the word to come and bring with it perimeters, a treatment plan, hope. Surely, if someone can tell us what’s wrong,... Read more

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May 23

May 23, 2016

Why I Sometimes Hide From Super Cute Moms

Why I Sometimes Hide From Super Cute Moms

I see you super cute mom. I do. I see you rocking those new highlights and those trendy clothes. I see you volunteering at the school party and preparing to sweat it up at the gym. I see you heading out for coffee with friends and making your Pinterest-perfect crafts. I see you enjoying your “girl’s day” at the nail... Read more

Posted in Chronic illness and relationships, Chronic Life, Parenting and Chronic Illness | By

May 9

May 9, 2016

How Sickness Changes Everything

How Sickness Changes Everything

I’m not sure where the memory crawled out from, where it’s been hiding all of this time or why it resurfaced at all. It was the afternoon of my brother’s death. His body gone for hours now, ladies from the church busied themselves with cleaning, and my siblings sat at the kitchen table eating a meal someone had brought. Fried... Read more

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May 5

May 5, 2016

Parenting and Chronic Illness

What This Picture Doesn’t Tell You But I Will…

In a moment, this momma would do it again because any mom would be there for their child! I was determined and would not be deterred from seeing my daughter’s first performance at a competition. She had worked so hard. For sure, it was worth it to hug her and see the joy on her face! But I need you... Read more

Posted in chronic illness; support, Chronic Life, Lyme Disease, Parenting and Chronic Illness | By

Apr 11

April 11, 2016

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Meeting Others In Their Pain

Today, the five of us sat at the table, eating lunch and talking about death. Sometimes laughing and at other times in tenuous, heavy tones— we talked about what we’d want our funerals to look like and how we felt about the ones we’d been to. I’m not sure how the conversation led us to this place, but I’m also... Read more

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