Viewing: Chronic Life

Feb 16

February 16, 2017

The Warrior’s Crown

The Warrior’s Crown

I’m a fighter.  At least, that’s what I’ve told myself over the years.  I fight in the sense that I won’t let you down or I will not buckle under the external pressures of life.  I will not be deterred.  I will do what needs to be done, what must be done.  But would that persona translate to battlefields of... Read more

Posted in Caregivers, Chronic Life, Love | By

Jan 30

January 30, 2017

The Dangers of Love on the Wildwood Exit

The Dangers of Love on the Wildwood Exit

You hear a lot about happiness on your wedding day.   He just seems to make her so happy.   The bride was beaming with happiness.   I hope you two live happily ever after.   And whether she realizes it or not, every blushing bride prances down the aisle with her own vision of what her happily ever after... Read more

Posted in Autism, Chronic Illness and Diagnosis, Chronic Life, CVID, Lyme Disease, Marriage | By

Jan 26

January 26, 2017

Give Me Eyes to See in the Darkness

Give Me Eyes to See in the Darkness

My eye doctor was the happiest person I knew. As in unusually excited about his profession and life. So I wasn’t surprised when he proudly told me he had new technology he wanted to use. Retinal imaging provides never seen pictures of the back of the eye which aid in early detection of glaucoma or cataracts. I tried to be... Read more

Posted in Chronic Illness and Diagnosis, Chronic Life | By

Jan 23

January 23, 2017

Sickness Is Your Superpower

Sickness Is Your Superpower

You drink in the warmth of the sun on your skin, your hair dancing in the breeze, the sound of children laughing in the background. Somewhere, someone is grilling steaks for dinner. The scent is nothing less than glorious and today, you are in love with life. Yes, your joints are just as swollen as they were yesterday and your... Read more

Posted in Chronic illness and relationships, chronic illness; support, Chronic Life | By

Jan 5

January 5, 2017

The One Who Comes to Steal

The One Who Comes to Steal

Have you ever fallen victim to a robbery? Perhaps while you were slumbering, one foot thrust outside of the covers and one resting peacefully within oblivious to the deafening sounds of your partner’s ear piercing snores, someone approached. A masked man shattered glass and your sense of safety all in one fell swoop. They ransacked your home in search of... Read more

Posted in chronic illness; support, Chronic Life | By

Nov 17

November 17, 2016

5 Moments in My Chronic Illness Journey That Changed Me

5 Moments in My Chronic Illness Journey That Changed Me

We all have moments in our journey that change us, for better or for worse. Maybe these moments grow us or educate us on the ways of the world. Perhaps, they teach us that life is painful or people are not to be trusted. Some moments might teach us there is beauty and living yet to come. Others still, might... Read more

Posted in Chronic Illness and Diagnosis, Chronic Life | By

Nov 10

November 10, 2016

Gratitude: the Anchor in the Storm of Suffering

Gratitude: the Anchor in the Storm of Suffering

I’ve struggled with this piece. With what words to put on a page. The thing is-I don’t want to hurt you. And it’s such a fine line in my mind, between choosing gratitude and invalidating someone’s pain. I never want to invalidate your pain. Whether it was caused by chronic illness or the loss of a relationship, a devastating career... Read more

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Oct 24

October 24, 2016

10 Must-Haves for Your Chronic Illness Journey

10 Must-Haves for Your Chronic Illness Journey

A Sense of Humor– Trust me on this one. Maybe you feel more like crying than laughing and I want to be clear––––there is no shame in crying. Furthermore, there is a time for crying. But when you are all cried out, laughter is such good medicine. Laughter has the power to make the seemingly impossible, possible. Laughter pushes back... Read more

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Oct 17

October 17, 2016

6 Chronic Illness Warriors I Admire

6 Chronic Illness Warriors I Admire

At the risk of sounding like a creeper: I love people. If Buddy the Elf loves smiling, smiling is his favorite, I love people. People are my favorite. I am intrinsically drawn to people. If you were to ask me what my favorite thing about any job or position I’ve ever held was my answer would be simple: the people.... Read more

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Oct 3

October 3, 2016

Chronic Illness Made Me Do It

Chronic Illness Made Me Do It

The list of words I never wished to utter is surprisingly long.   “I can’t.”   “It hurts.”   “The pain is unbearable.”   “I would honestly rather die than live another day like this.”   “I don’t understand. What did I do wrong?”   “I need more from you.”   “I think I might be losing my mind.”  ... Read more

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