Viewing: Chronic Life

Nov 10

November 10, 2016

Gratitude: the Anchor in the Storm of Suffering

Gratitude: the Anchor in the Storm of Suffering

I’ve struggled with this piece. With what words to put on a page. The thing is-I don’t want to hurt you. And it’s such a fine line in my mind, between choosing gratitude and invalidating someone’s pain. I never want to invalidate your pain. Whether it was caused by chronic illness or the loss of a relationship, a devastating career... Read more

Posted in Chronic Life | By

Oct 24

October 24, 2016

10 Must-Haves for Your Chronic Illness Journey

10 Must-Haves for Your Chronic Illness Journey

A Sense of Humor– Trust me on this one. Maybe you feel more like crying than laughing and I want to be clear––––there is no shame in crying. Furthermore, there is a time for crying. But when you are all cried out, laughter is such good medicine. Laughter has the power to make the seemingly impossible, possible. Laughter pushes back... Read more

Posted in Chronic Life | By

Oct 17

October 17, 2016

6 Chronic Illness Warriors I Admire

6 Chronic Illness Warriors I Admire

At the risk of sounding like a creeper: I love people. If Buddy the Elf loves smiling, smiling is his favorite, I love people. People are my favorite. I am intrinsically drawn to people. If you were to ask me what my favorite thing about any job or position I’ve ever held was my answer would be simple: the people.... Read more

Posted in Chronic Life | By

Oct 3

October 3, 2016

Chronic Illness Made Me Do It

Chronic Illness Made Me Do It

The list of words I never wished to utter is surprisingly long.   “I can’t.”   “It hurts.”   “The pain is unbearable.”   “I would honestly rather die than live another day like this.”   “I don’t understand. What did I do wrong?”   “I need more from you.”   “I think I might be losing my mind.”  ... Read more

Posted in Chronic Life | By

Sep 22

September 22, 2016

The Answer to the Question, "How Are You?"

The Answer to the Question, “How Are You?”

How are you feeling? It’s got to be the most loaded question out there. As a chronic illness fighter/warrior/survivor I don’t really know how to answer that question. Heck, I don’t even really know what to call myself in terms of chronic illness. Probably not. Not many of the spoonies I know do. It’s too much to get started with... Read more

Posted in chronic illness; support, Chronic Life | By

Sep 12

September 12, 2016

How to Be a Savvy Spoon Investor

How to Be a Savvy Spoon Investor

Long, long ago in a land far, far away I was a licensed personal finance representative for a large bank. Meaning, I sold bank products like loans and checking accounts, but also helped people plan for retirement. So let’s pretend you wandered into the bank on a muggy Tuesday in hopes of opening a checking account before your favorite T.... Read more

Posted in Chronic Life | By

Aug 29

August 29, 2016

3 Epic Fails to Avoid

3 Epic Fails to Avoid

My goal today is to ensure you that you are in fact handling your chronic illness and life in general far better than you think you are. As evidence, I’ll introduce to you a horrifyingly embarrassing collection of personal epic fails from the last several weeks. This is how great my love for you is. I think we’ve talked about... Read more

Posted in Chronic Life, Enjoyable Nonsense, Parenting and Chronic Illness | By

Aug 11

August 11, 2016

Licking the (Yummy) Filling of an Oreo Sandwich Cookie

Licking the (Yummy) Filling of an Oreo Sandwich Cookie

Out of all that happened this past week, three things stand out: 1) I had to take my car into the repair shop for the nth time this month, due to the inadvisability of driving with the engine light on, 2) My husband and I watched a gorgeous sunset (from our kayaks) across a beautiful little private lake during our... Read more

Posted in Chronic Illness and Pain, chronic illness; support, Chronic Life, Faith, Rheumatoid Arthritis | By

Aug 9

August 9, 2016

5 Things the Chronically Ill Want “Healthy People” to Know

5 Things the Chronically Ill Want “Healthy People” to Know

Sometimes, the gap between us can feel insurmountable. Maybe we’ve become so immersed in our world of sickness and symptoms we can’t remember what it’s like to be healthy. We stare at you with curiosity and wonder like you’re an unknown species. Maybe you feel the same. You want to understand the chronically ill in your world, but they feel... Read more

Posted in Chronic illness and relationships, chronic illness; support, Chronic Life, Relationships | By

Aug 1

August 1, 2016

How to let go of doing it all by yourself

How to Let Go of Doing It All by Yourself

My disability hearing is Monday morning. It feels more like a sentence imposed upon me than anything else. I picture the judge as a monster from a Stephen King novel, his gavel an instrument of punishment posed to administer my lashings. And what was my crime, you ask? I’m not sure, really. Maybe it was asking for help, wasting the... Read more

Posted in Caregivers, Chronic Life, Disability | By