Viewing: Chronic Life

Aug 28

August 28, 2017

Rest and Care, Not Rejected Over Something As Silly As Hair

Rest and Care, Not Rejected Over Something As Silly As Hair

Over the last few weeks, my hair has been falling out at a steady and somewhat alarming rate. I posted about it on one of my social media accounts, saying, “It’s part of what happens during flares. It’s hard to say how many years it’s been happening on and off, or how many years I sought out physicians in an... Read more

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Aug 17

August 17, 2017

3 Things I Want You to Remember on Bad Days

3 Things I Want You to Remember on Bad Days

Just when we think we might be getting a handle on things, our latest diagnosis or setback, we find ourselves reeling. Be it a flare, a concerned call from the doctor, a flagged set of numbers in our weekly blood work, or a day when the pain is seemingly unbearable, it can be hard to remember things might ever be... Read more

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Aug 10

August 10, 2017

How to Find the Light When It All Goes Dark

How to Find the Light When It All Goes Dark

Today started out on an aggravating note. The repair guy at the house there to fix some damage from our lightning strike showed up late, causing me to run late for a meeting with an editor. My head has hurt for days, and it decided to pick today to amp up the pain to ten. There were some troubles with... Read more

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Jun 12

June 12, 2017

A surgery happy dance. Twerking-style.

A surgery happy dance. Twerking-style.

It’s weird to be happy about surgery. Of course, I would prefer not to need surgery. I would prefer that my insides worked the way they’re supposed to. I would prefer not to have had IBS for 40 years. But all my preferring doesn’t change reality. And the reality is that I need surgery and I’ll be glad to finally... Read more

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Jun 8

June 8, 2017

Is It Invisible Illness or Not Willing to Be Understood Illness?

Is It Invisible Illness or Not Willing to Be Understood Illness?

By now you’ve probably figured out I’m “sick.” I have issues with that statement for two major reasons. One, to me the word sick has always seemed so temporary. There needs to be a better, stronger word for what I am. But yes, I guess I am sick. I guess I know it. Grumble, grumble, grumble. Two, I don’t want... Read more

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Jun 5

June 5, 2017

When Faceless Rescues Count the Most

When Faceless Rescues Count the Most

At sixteen, I had a cyst that ruptured, causing me to lose over half the blood in my body. I was sweeping the hallway bathroom in preparation of my brother’s homecoming when a gush of blood flooded my legs and then the floor. “Concerning.” I thought. I’d already had my period that month, and I’d certainly never had a period... Read more

Posted in Chronic Illness and Diagnosis, chronic illness; support, Chronic Life | By

May 30

May 30, 2017

How to Live Life in Spite of Chronic Pain and Fatigue

How to Live Life in Spite of Chronic Pain and Fatigue

How do you explain chronic, debilitating fatigue to a world that wakes up well-rested? How do you explain sickness and limitations being the norm to a people who’ve only known health and limitless living? Can you? I remember (quite woefully, now) before the hostile takeover when sickness was still something I could hide, push beyond for the most part, I... Read more

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May 11

May 11, 2017

IBS: A humorous Look at a Posterior Predicament.

IBS: A Humorous Look at a Posterior Predicament.

My raunchy rump has been very bad lately, so I think that qualifies me as a bad-ass. Well, it’s not actually my rear end that’s been naughty, it’s the things inside of it. You know. I hate to even say the names. I never thought I was a prude, but a few years ago, when that part of my anatomy started... Read more

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May 8

May 8, 2017

5 Tips for Working While Chronically Ill

5 Tips for Working While Chronically Ill

Before we go any further if you have a chronic illness and you’re working I want to applaud you. Chronic illness travels with us wherever we go. It doesn’t care about deadlines or dreams or unreasonable bosses. So if you’re still working, you’re clearly handling life like a boss. On the flip side, if you came to a point where you... Read more

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May 4

May 4, 2017

When You Aren’t Sure You Can Live Like This

When You Aren’t Sure You Can Live Like This

Like a bird I soared, high above the clouds, soaking in the sun, inhaling the sheer goodness of life. I breathed in possibilities and exhaled delight. Surely, the sun was a more golden hue than it had ever been before. Was that a lullaby of babies laughing I heard? All was right with the world. And then I plummeted to... Read more

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