Viewing: Chronic Illness and Diagnosis

Mar 3

March 3, 2016

That Time I Blurted Out My Secret

My mouth tends to get me in trouble. Perhaps it’s a snarky comment that escapes before my brain engages, or it’s my warped sense of humor that maybe only one or two people on the planet understand. But there was a day that my mouth said something that shocked even me, in that short brief moment, a revelation was sparked.... Read more

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Feb 22

February 22, 2016

How I (almost) Missed The Fight

If I told you how many medical professionals I interact with on some level over the course of an average month, you’d probably spit your coffee out. And since I’m a nice girl who doesn’t want you to have to do that, I’m going to keep it vague. But let’s just say that if going to the doctor was a... Read more

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Feb 11

February 11, 2016

How I Fought To Be A Better Mom

I know everyone thinks their kid is the best, I do. But if you just knew my oldest, I’m certain you’d agree.   He’s such a ridiculously good kid.   This is not something I feel I can take much credit for, as the fiber of Hayden’s being has always been inherently good.   He delights in celebrating people, loving extravagantly,... Read more

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Jan 23

January 23, 2016

Can I Have A New Mom?

We Don’t Get to Pick

Yesterday was hard.   I just need to stick a stake in the cold, hard ground and mark that from the start.   Not so much because of what happened, as much as how it wrecked me.   From the time Avery was born, when I saw that fleshly little girl and took her in with majestic awe and wonder,... Read more

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Jan 21

January 21, 2016

The Journey to Finding Help

I have hereditary Fibromyalgia, but for most of my life, I didn’t know that.  I had been to many doctors. None of them knew what was wrong. I presented with different symptoms at different times, but one thing remained the same— I was always in pain. I have had numerous hospital stays, and terribly painful tests run to no avail.... Read more

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Jan 18

January 18, 2016

When its “All in Your Head”

You’ve been battling soul-crushing symptoms for months now. Desperate for relief, and terrified of the answers you’ve somehow managed to wait the agonizing three months it’s taken to see the specialist your primary care physician referred you to. After a battery of painful, expensive and frightening tests, it’s time to go over the results. The specialist looks you in the eye... Read more

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Jan 13

January 13, 2016

Fighting With the Chronically Ill

Anita I remember the first time I heard about chronic illness. Although I didn’t fully understand what chronic illness was or had never even heard the term, my first memory of it was called fibromyalgia and it sunk teeth deep into my mother in law’s body. She was very energetic. She was accustomed and happy to do everything in and... Read more

Posted in Caregivers, Chronic Illness and Diagnosis, Chronic Illness and Pain, Chronic illness and relationships, chronic illness; support | By

Nov 12

November 12, 2015

Steady Heart

What comes next? What if one day the RA becomes so bad I can’t brush my own teeth? What if the inflammation goes to my heart and kills me? What if. What if. What if. Your set of what ifs may look much different or the same. Unless you have a very different skill set than me, we have one... Read more

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Nov 5

November 5, 2015

My Dog Might Outlive Me

When you have a chronic illness, you are always acutely aware of your own mortality. It’s not as if you walk around like the walking dead, but considering life long plans takes on a different flavor. Recently we got a new puppy. It was a big decision, as our other dog is elderly, and our boys will be grown and... Read more

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Sep 28

September 28, 2015

Hope In the Waiting- Searching for a Diagnosis

Maybe it started with a strange tingle in your hand or a pressing fatigue that could never be satisfied. It could have been that deep knowing that something was wrong that set you off. However it began, now you find yourself in the waiting. Like so many others, you’ve been to countless doctors and clinics searching for answers, only to... Read more

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