Viewing: Chronic Illness and Diagnosis

Apr 2

April 2, 2018

I just want to be normal. Do I tell the truth?

I just want to be normal. Do I tell the truth?

“Just tell the truth. Adults like truth. Then you won’t get in trouble and you’ll still be able to come over.” I was sitting on my screened porch listening to the neighbors children play. I’d just heard the sound of shattering glass as their baseball broke their garage window. I had to chuckle at the statement, and the irony of... Read more

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Mar 22

March 22, 2018

When Your Child Gets the Diagnosis

When Your Child Gets the Diagnosis

My last child is a worrier. She worries that her classes won’t be far enough apart that she can get to them ten minutes early. She worries that her cats will forget her while she’s gone. She worries that we will miss a train when we travel and be trapped forever in a foreign city where no one speaks English... Read more

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Feb 12

February 12, 2018

Moving On-Grieving What Was and Embracing What Will Be

Moving On-Grieving What Was and Embracing What Will Be

Growing up, moving was a semiannual occurrence. Sometimes the news of our impending relocation was crushing. Perhaps, my latest love interest had just professed his affection, or I had secured the lead role in the school play (this was never the case for me, but once was for my older brother.) Other times, a move was welcome news, a reprieve... Read more

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Jun 5

June 5, 2017

When Faceless Rescues Count the Most

When Faceless Rescues Count the Most

At sixteen, I had a cyst that ruptured, causing me to lose over half the blood in my body. I was sweeping the hallway bathroom in preparation of my brother’s homecoming when a gush of blood flooded my legs and then the floor. “Concerning.” I thought. I’d already had my period that month, and I’d certainly never had a period... Read more

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Feb 13

February 13, 2017

How One "Spoonie's" Bravery Healed My Heart

How One “Spoonie’s” Bravery Healed My Heart

Some people open their mouths and change your whole world. They tell their story and suddenly your fractured heart begins to heal itself. Confusion and isolation, your long-time companions go out for a smoke break. Someone is singing your heart’s song when you didn’t even know they knew the words. So this is what it feels like? To be seen,... Read more

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Jan 30

January 30, 2017

The Dangers of Love on the Wildwood Exit

The Dangers of Love on the Wildwood Exit

You hear a lot about happiness on your wedding day.   He just seems to make her so happy.   The bride was beaming with happiness.   I hope you two live happily ever after.   And whether she realizes it or not, every blushing bride prances down the aisle with her own vision of what her happily ever after... Read more

Posted in Autism, Chronic Illness and Diagnosis, Chronic Life, CVID, Lyme Disease, Marriage | By

Jan 26

January 26, 2017

Give Me Eyes to See in the Darkness

Give Me Eyes to See in the Darkness

My eye doctor was the happiest person I knew. As in unusually excited about his profession and life. So I wasn’t surprised when he proudly told me he had new technology he wanted to use. Retinal imaging provides never seen pictures of the back of the eye which aid in early detection of glaucoma or cataracts. I tried to be... Read more

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Dec 1

December 1, 2016

When the Other Shoe Drops

When the Other Shoe Drops

Not long ago, I sat with my daughter on my lap, holding her arms down while she screamed. The first attempt at a blood draw had failed and we were moving on to the second arm. She’ll be five next month. She usually does quite well with these things. She hops up into the chair, thrusts her arm upon the... Read more

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Nov 17

November 17, 2016

5 Moments in My Chronic Illness Journey That Changed Me

5 Moments in My Chronic Illness Journey That Changed Me

We all have moments in our journey that change us, for better or for worse. Maybe these moments grow us or educate us on the ways of the world. Perhaps, they teach us that life is painful or people are not to be trusted. Some moments might teach us there is beauty and living yet to come. Others still, might... Read more

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Sep 26

September 26, 2016

Is Accepting Our Diagnosis a Good Thing or Bad Thing?

Is Accepting Our Diagnosis a Good Thing or Bad Thing?

Like many, the early stages of my diagnoses were often fraught with a rapid, fluid exchange of emotions and thought processes. One day they were the end of the world and the next they were maybe not so bad after all. However, with each diagnosis, my processing window shortened, and I steadied myself more quickly. I’ve always been a dichotomy.... Read more

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