Viewing: Caregivers

Sep 7

September 7, 2017

CONFESSION: MY FRAGILE SHELL IS ABOUT TO BREAK

You think I’m strong. You think I’m brave. You think that I can weather any storm. Life’s thrown me some pretty tough curve balls, and from your perspective, I’ve knocked them out of the park. You see me smile despite heartache, and you watch me push forward while the ground collapses underneath. You hear me laugh when I should cry,... Read more

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Aug 14

August 14, 2017

How I Learned the Simple Life Lesson of Pause and Perspective

How I Learned the Simple Life Lesson of Pause and Perspective

When I first met my neighbor Josie (who I nick-named ‘Trouble”) she was a feisty, kick-butt go get ’em kind of gal who ran circles around  women 20 years her junior.  She was a gourmet cook, an adjunct college professor and an all-around real-life know-it-all. For some reason she took a liking to me and chose to fit me into her... Read more

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Jun 22

June 22, 2017

Giving Grace in Marriage When Chronic Illness is Present

Giving Grace in Marriage When Chronic Illness is Present

Not long ago, Ryan and I teamed up with the amazing folks over at The Knot Project to talk about what showing grace in a marriage where chronic illness looks like for us. Ryan is thankful I don’t kill him in his sleep for all the snoring, and I confess to having a few control issues. 🙂 Check it out! Share on... Read more

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May 18

May 18, 2017

To the Most Beautiful Woman I've Ever Seen: Love Doesn't End Here

To the Most Beautiful Woman I’ve Ever Seen: Love Doesn’t End Here

You stood in front of me in your brown velvet tracksuit as you embraced your daughter one last time. Your eyes brimmed with glassy tears as you turned to me and said, ”She almost died last year. She’s still having symptoms. Keep in in your prayers, will you?” I told you we could pray right then if you’d like, but... Read more

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Feb 16

February 16, 2017

The Warrior’s Crown

The Warrior’s Crown

Fight I’m a fighter.  At least, that’s what I’ve told myself over the years.  I fight in the sense that I won’t let you down or I will not buckle under the external pressures of life.  I will not be deterred.  I will do what needs to be done, what must be done.  But would that persona translate to battlefields... Read more

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Dec 1

December 1, 2016

When the Other Shoe Drops

When the Other Shoe Drops

Not long ago, I sat with my daughter on my lap, holding her arms down while she screamed. The first attempt at a blood draw had failed and we were moving on to the second arm. She’ll be five next month. She usually does quite well with these things. She hops up into the chair, thrusts her arm upon the... Read more

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Oct 31

October 31, 2016

Did You Just Cough In My Face?

Did You Just Cough In My Face?

I avoid germs like the plague because for me, well, germs pretty much are the plague. What may be just a little virus or an annoying little cold for one person is a show-stopping, game-changing, progress-reversing, month-stealing seriously big deal for me. I try to explain this to people. I stammer on about my compromised immune system as I spray the couch... Read more

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Aug 18

August 18, 2016

How to Cope With the Train Wreck of New Diagnosis

How to Cope with the Train Wreck of New Diagnosis

As I lay in the darkness, my fingers poised on the keys of my laptop, tears run down my cheeks  as I listen to the sound of my son’s feeding pump a few feet away–a constant reminder that my normal isn’t really normal at all. In a recent trip to Helen DeVos Children’s Hospital, I sat in a chair watching... Read more

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Aug 1

August 1, 2016

How to let go of doing it all by yourself

How to Let Go of Doing It All by Yourself

My disability hearing is Monday morning. It feels more like a sentence imposed upon me than anything else. I picture the judge as a monster from a Stephen King novel, his gavel an instrument of punishment posed to administer my lashings. And what was my crime, you ask? I’m not sure, really. Maybe it was asking for help, wasting the... Read more

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Jul 28

July 28, 2016

To Melanie, from Your Future Chronic Illness

To Melanie, from Your Future Chronic Illness

You’re an adult now, newly 18. You’ll leave for college soon and it won’t be easy. The adjustment won’t be too bad, you’ll make a few friends and earn good grades. But as the year progresses, the real difficulty begins. When you can’t use the restroom without crying because of pain and your mom comes to pick you up to... Read more

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