Posts By: Stacey Philpot

Feb 13

February 13, 2017

How One "Spoonie's" Bravery Healed My Heart

How One “Spoonie’s” Bravery Healed My Heart

Some people open their mouths and change your whole world. They tell their story and suddenly your fractured heart begins to heal itself. Confusion and isolation, your long-time companions go out for a smoke break. Someone is singing your heart’s song when you didn’t even know they knew the words. So this is what it feels like? To be seen,... Read more

Posted in Chronic Illness and Diagnosis, chronic illness; support | By

Feb 9

February 9, 2017

6 Tangible Ways to Support the Hurting in Your World

6 Tangible Ways to Support the Hurting in Your World

It’s commonplace to rally around joyous transitions, signing up to bring new parents a meal or two to sustain them during the first sleepless days of a newborn’s life, pitching in to help the neighbors throw a graduation party for their high school senior. It’s also commonplace to circle the wagons around those who have lost a loved one with... Read more

Posted in Cancer, Community, Relationships | By

Feb 6

February 6, 2017

10 Ways You Can Help Me on the Bad Days

10 Ways You Can Help Me on the Bad Days

Living with chronic illness is hard. There are days the pain, fatigue, and every-day-ness of it is too much to push through. A huge part of chronic illness, at least for me, is pushing through because giving up isn’t a choice, but there are some days when it’d be easier than others to throw in the towel. Your friends want to help.... Read more

Posted in chronic illness; support | By

Feb 2

February 2, 2017

Learning to Live in Times of War and Famine of the Soul

Learning to Live in Times of War and Famine of the Soul

I sat before the doctor; equal parts wise and kind, spritely and gentle. He has one tuft of white hair that shoots straight up while the others have been tamed. Somehow this makes me love him all the more. His spectacles sit low on his nose as he studies my most recent labs. He is eager to get to work.... Read more

Posted in chronic illness; support, Coping | By

Jan 30

January 30, 2017

The Dangers of Love on the Wildwood Exit

The Dangers of Love on the Wildwood Exit

You hear a lot about happiness on your wedding day.   He just seems to make her so happy.   The bride was beaming with happiness.   I hope you two live happily ever after.   And whether she realizes it or not, every blushing bride prances down the aisle with her own vision of what her happily ever after... Read more

Posted in Autism, Chronic Illness and Diagnosis, Chronic Life, CVID, Lyme Disease, Marriage | By

Jan 26

January 26, 2017

Give Me Eyes to See in the Darkness

Give Me Eyes to See in the Darkness

My eye doctor was the happiest person I knew. As in unusually excited about his profession and life. So I wasn’t surprised when he proudly told me he had new technology he wanted to use. Retinal imaging provides never seen pictures of the back of the eye which aid in early detection of glaucoma or cataracts. I tried to be... Read more

Posted in Chronic Illness and Diagnosis, Chronic Life | By

Jan 23

January 23, 2017

Sickness Is Your Superpower

Sickness Is Your Superpower

You drink in the warmth of the sun on your skin, your hair dancing in the breeze, the sound of children laughing in the background. Somewhere, someone is grilling steaks for dinner. The scent is nothing less than glorious and today, you are in love with life. Yes, your joints are just as swollen as they were yesterday and your... Read more

Posted in Chronic illness and relationships, chronic illness; support, Chronic Life | By

Jan 20

January 20, 2017

Can I Have A New Mom?

Can I Have a New Mom?

We sat around our well-worn kitchen table, my four-year-old excitedly reporting on the fun she’d had that day at Grandma and Grandpa’s house. There had been nature walks and scavenger hunts, pool-time and even bowling. I strained to hold my body up and utter whole sentences in response while we ate the take-out my husband had purchased on the way... Read more

Posted in chronic illness; support | By

Jan 16

January 16, 2017

The Year I Began Really Living (Again)

The Year I Began Really Living (Again)

Sometimes people choose a word or a phrase to focus on in the year ahead. Others make goals or resolutions. Others still, like precious friends of mine wrote out a manifesto, guiding principles they sought to live by for years to come. In years past, these are things I’ve given tremendous credence to, making room to reflect on the year... Read more

Posted in Self-Care | By

Jan 12

January 12, 2017

Fake It, Because You Have It Make It.

Fake It, Because You Have It Make It.

I’m chronically ill. I have, among other things, an extremely rare form of MS, Trigeminal Neuralgia, and many forms of chronic migraine and headache. It makes day to day living a challenge, but a challenge I graciously accept. Certainly, don’t want to be dead. I still manage to work part-time. I don’t have any other choice since it’s the only... Read more

Posted in Disability, Rare Disease | By