About Me

photoHi! I'm Stacey. It's my desire that this would be a safe and helpful place for you. A place where you can share your story and find hope.

When my journey started six years ago, the emotions that continued to rise to the surface were: lost, alone, confused. I went from running three miles most days and working with a personal trainer to being unable to walk myself to the bathroom within a matter of months. I hope and pray that for you, life hasn't been turned upside down in such an extreme manner. However, should you ever find yourself feeling lost, alone, confused, or frustrated (hello insurance companies, can I get an amen?!), I hope this will be a place where you can come and find rest.

I didn't know where to turn in those early days. I didn't know where to go with my questions or my pain. I didn't know how to let anyone love sick me or gaining weight me. I couldn't see how life could ever have meaning again. Six years later, I hope to share some of what I've learned, like how to deal with the insurance companies and how to let grace find me here.  And I am hoping that you will share with me what you've learned along the way. I've determined not to let chronic illness or any of its friends win in my life.

Let's cheer one another on, shall we?

On to the fun stuff! I have three super awesome kiddos in my house. I am Mom to Hayden and Avery, stepmom to Julie and wife to Ryan (a smarty-pants who works at NASA and logs our whole lives on spreadsheets and pie charts, true story!). I am an author, goof-ball, and avid reader. I'm also a teacher at heart, meaning I spent many years in the classroom shaping budding geniuses and fragile hearts. I live to learn and share what I'm learning along the way. I graduated from the University of Houston with a Bachelors in Psychology and intend to start a Masters soon. I have a strange affinity for eating whole meals in my bed (don't tell anyone).

Now, tell me about you!

(People often ask, "What do you have?" They mean, "What kind of sick are you?" My current diagnoses include: CVID,  Lyme, RA, Vasculitis, Interstitial Cystitis and some other stuff I can't remember right now.) 

Please connect with me on Facebook, Twitter, and Pinterest.

You can also find me at:

  • Share on Tumblr

18 Comments

  1. Carmen
    July 8, 2015

    Leave a Reply

    Thank you Stacey for expressing so beautifully the feelings that accompany chronic illness.
    I have also experienced a deep feeling of shame over something I can’t control. I know in my head it’s not my fault ,but some people that are very close to me seem to think I’m “normal ” and can or should do more. I think I am doing pretty well,and their expectations just crush me. I want to be free to be who I am now,and to be loved for the person I am inside! You know, the way My Heavenly Father loves me!!!
    In Christ I am of great value and worth, completely accepted,unconditionally loved,never alone or forsaken,precious in His sight, a victorious overcomer,His child !! And much more!!

    • Stacey Philpot
      July 9, 2015

      Leave a Reply

      Yes!! That is exactly who you are! I pray that in time, they will have eyes to see you that way as well and be freed to give you the love you need and deserve. I will say, that unless you’ve experienced chronic illness or spent a tremendous amount of time up close with someone experiencing it, understanding can be hard. Also, they have to WANT to understand. I celebrate your bravery and fight. Keep on keeping on!

  2. irene
    February 15, 2016

    Leave a Reply

    Hi – I was comforted by your husband’s writing and shared it on FB, rereading for myself. Thanks also for your writing here. Your honesty is greatly appreciated. My husband has advancing Parkinson Disease. Thank you for being here!

  3. Stacey Philpot
    February 15, 2016

    Leave a Reply

    Irene,

    I am so sorry to hear about your husband and so glad that you are here. It is for you and your husband that we write, that we share our hearts and our story here. Thank you for the loving and the caring you are doing. We celebrate you and the sacrifices you make each and every day.

  4. Lyons & Hohl
    June 10, 2016

    Leave a Reply

    Thanks for the great insight.

  5. Genevieve: Ship With No Sails
    July 20, 2016

    Leave a Reply

    Your story mirrors my own so much. I was an avid runner before getting sick. It wasn’t uncommon for me to run 8 miles before work and I LOVED running races from one mile to 13.1. Those days feel a million years away now that I have been in a wheelchair for over a year. I also like you have a BA in psychology! Excited to have found your blog and to read more, it’s always helpful to find others like you. I know it makes me feel less alone. Sending you high fives and hope.

    • Stacey Philpot
      July 20, 2016

      Leave a Reply

      It feels like another lifetime doesn’t it? Fingers crossed we have a few races to run yet.

  6. Debbie Stevens
    July 28, 2016

    Leave a Reply

    Hi Stacey! I read your article about the unexpected woman who came to your door. You were feeling pretty good that day, but she said things that startled you and made you feel depressed. It’s amazing how the devil uses others to attack us in our weak areas. I am a 61 year old RN with at least 4 autoimmune disorders: Hashimoto’s thyroiditis, narcolepsy, celiac disease and chronic fatigue syndrome. I empathize with how you felt that day. By the grace of God I am still working full time, but currently on a LOA. A few of my coworkers continue to bully me even though they know about my disorders and struggles, but most of my coworkers are supportive. I realize the devil is using them to discourage me. But it is still very hard to take. I’m trying to learn how to overcome the bullies. I’m looking forward to retirement and spending more time with my large family and hoping to go into the functional medicine/integrative nursing field. Traditional medicine has obviously not done much to help me get better. Thanks for your blogs.

  7. Stacey Philpot
    August 13, 2016

    Leave a Reply

    Debbie,

    You make an important distinction in your post about who our real enemy is. When the hurt is new and raw it can be so easy to forget. Before we know it bitterness and resentment come in. You are doing well to remember who we are fighting. We can do our part and educate those around us. The rest is out of our hands. Thanks for reading. I’m cheering you on as you fight your fight!

  8. Kelly Russell
    August 22, 2016

    Leave a Reply

    I love the title of the site. Chronically whole. Yes we are. Even when we feel as broken as broken gets.

    • Stacey Philpot
      February 13, 2017

      Leave a Reply

      Yes, Kelly. I wanted to honor the fact that while our bodies might be broken, WE are whole!

  9. Terri
    October 4, 2016

    Leave a Reply

    Stacy,

    Thank you for your post about your son. Your son is courageous.

    Conviction;
    But what exactly do we mean by the term conviction? Conviction means “the act or process of convincing,” “the state of being convinced,” or “a fixed or strong belief.” Thus, by biblical conviction we mean convictions or beliefs derived from and based on a commitment to Scripture, the Bible. As God’s Holy Word, it is the absolute index for the whole of our lives—faith and practice.

    Conviction refers to the state of being convinced and confident that something is true; it means a strong persuasion or belief. In other words, conviction stands opposed to doubt and skepticism. When we think of a man of conviction, we also think in terms of action and direction. We think of a person whose convictions have a definite impact on how he lives, on what he does, says, and where he goes. By a man of biblical convictions we mean a man whose convictions are derived from Scripture and whose convictions affect him scripturally.

    Biblical conviction is really the product of three things that characterize the ideal Christian leader or the person of maturity: (a) a commitment to Scripture as one’s authority, (b) the construction of specific beliefs and convictions based on that authority, and (c) the courage to act on those convictions in faith.

    I believe my son would like to remind me God can do big things with your standing alone. God sees, he knows, and he can do big things.

    I found it this morning through a friend. You are truly blessed and a blessings.

  10. Lori
    October 4, 2016

    Leave a Reply

    Stacy, I’m new to your blog but I’m so thankful that I found it! I too suffer from the invisible illness. Why I feel guilt about is a mystery to me. I have raised 3 amazing kids. One daughter is a 2nd grade teacher and married almost a year and a half. The other daughter is a senior in college and is studying to help families and children in distress. My son, my baby, is a junior in high school, is very involved in our youth group at church and is just a down right good person.
    The reason that I’m singing their praises is because I gave raising them everything I have. It was my goal in life to stay home and raise my children. Now that those days are almost done I have this strange guilty feeling when I feel like the world wonders “so what do you do”? As if staying home for 25 years to raise good humans isn’t enough. Now add to that the guilt that comes from being sick and I’m just a mess. Sorry if I’m rambling on. It’s just nice to know there are others who understand 🙂

  11. Cathy Ott-Millon
    October 8, 2016

    Leave a Reply

    Stacey,
    Curious as to what you were diagnosed with. I sprained my ankle in 1999 and it went into CRPS/RSD. At the times my kids were in first and third grade. It has truly been a challenge living with this but I truly believe my kids are better adults now because of it. Best of luck to you!!!

    God Bless!!!

  12. Kim
    January 25, 2017

    Leave a Reply

    I knew the minute I read your piece that we had something in common, it just clicked…..Only a few sentences in ….I also have MS, thankfully I am doing great and all is well, but I’ve had my kiddos ( boy-5 girl-3 1/2) tell and ask me the same questions. ” Why are you so tired” “why don’t you play like dad”….etc…..If it wasn’t for my babies and the incredible support from my husband, id still be holed up in my room crying and feeling sorry for myself. So from one mama to the next with MS…. I am so glad I stumbled upon your website!!!!!

  13. Nancy Roe
    April 5, 2017

    Leave a Reply

    How do I subscribe to your blog?? Maybe I missed it. I am 66.I live with chronic pain and disability after a serious lower leg multiple fracture and knee injury 2 years ago. Very life altering.

    I love all that I have read from you!

    Nancy

  14. Stacey Philpot
    April 7, 2017

    Leave a Reply

    Hi Nancy,

    Thank you so much!

    If you scroll down on any of the blogs a little box will pop up for you to enter your email address and subscribe, or you can click on the little email icon at the top and email me and I’ll add you to the list.

    Thanks for your support. Cheering you on!

    Stacey

  15. Rachael Stull
    June 16, 2017

    Leave a Reply

    My story sounds so familiar to yours. In very good shape all of my life, Lyme slowly degrading my immune system, multiple autoimmune dx , finally chronic lyme, then….CVIDS. Professional Soil Scientist that used…to love my job (laden with every possible insect and high exposure), although I have had zero support from my employer after being very sick. Two kids (single mom), that I want nothing more than to be the best mom possible while some how defeating this, through the grace of God.
    It has been a battle, I hope to get to your place of happiness and leave the bitterness behind. You are an inspiration. Thank you.

Leave a Reply


You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <s> <strike> <strong>

*